Staring a new clinical trial..HELP
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Hi Peggy,
I hope that you get some good news tomorrow. I will be keeping everything crossed for you and am sending you tons of positive thoughts.
Best wishes to you and John,
Gavin
Hi Whitrockj,
I’m sorry your mom was not able to start her trial. My husband, John, has Stage IV intrahepatic CC. We see his oncologist tomorrow as he just had scans on Monday. His last scans in August were not good; his oncologist told us he was going to check to see if there were any trials that he might qualify for. I’m anxious to see if there are any trials and also, if these scans show any change from the last ones. John is taking gemzar/cisplatin/avastin now. I will keep your mom and your family in my prayers. Try to stay positive and keep fighting the fight. PeggyP
Dear Wittrock,
As the others have said, stay strong. I know sometimes that it can be hard to do, but your mum needs you to be strong for her right now and I know that you will be. And please remember that we are all here for you always. Loads of positive thoughts coming your way from me.
My best wishes to you and your mum,
Gavin
Wittrock….a tidal wave of support is heading your way. Remember this roller coaster ride….we are on it with you together.
All my best wishes,
MarionDear Wittrock-My prayers are with you and your mom. I have hard time posting on here sometimes because I am a CC survivor due to a clinical trial and I want all to have the same positive outcome I did. I like your mom was only 52 and our only child a junior in college, this was not a scenario I had ever pictured. Our stories are what you read about someone else and go “oh my”! I keep posting “CC survivor” to give HOPE! HOPE, Prayer and a great doctor is what will get you through this.
Lots of prayers-CathyDearest Wittrock, my prayers are most definitely with you. You just know wht I am going to say next….Be Strong!
Life is not the way it’s supposed to be. It’s the way it is. The way you cope with it is what makes the difference. We are all here for you.Wittrock,
You can bet that my prayers are with you and your mom. You are a good daughter and it is wonderful that you have the ability to care for her. Keep your chin up and keep fighting.
Update on my mom:
Well we have had a rough couple of days. Mom wasn’t feeling well late Tuesday night, so she went into the doctor Monday and they ran some labs, which landed her in the hospital. It appears her potassium and her albumin were low, so they wanted to put her in observation to give her some fluids and give her some zophran to help with the nausea she has been having. To date, mom had lost about 50 pounds on this journey, but after almost a week of NO eating, we were suprised to find her up 10 pounds. It apepars she is taking in some fluid in her legs, and I am now concerned she has some ascites in her belly. We wait this morning for a new report from our doctor back home and the oncologist at Mayo. We might be heading to Mayo to figure out what’s going on and see if we need to start some treatment instead of waiting for a clinical trial.
This has been some difficult news to swallow. I fear that this is just the beginning of things taking a turn, and getting worse. My mom is only 54 years old, with two daughters who are not yet married or have any children. I am scared she will miss out on all that life has to offer not only her but us. Please pray for my mom as we continue to wait for answers and hope to find something that will make her feel better soon. Thanks
wittrock….fitting the clinical trial criteria is a rigorous process and often times people will not be accepted due to various reasons. Don’t be discouraged as something better may be coming your way. Good luck and please, keep us posted.
All my best wishes,
MarionDear Wittrockj, oh, I am sorry to hear this. This is why we appropriately call CC a “roller coaster” ride. Hopefully the next appointment for her will be just want you want and need. Best wishes.
Well I am back again for another update. We received some disappointing news yesterday. Mom was at Mayo for her first rounds of baseline tests before starting the trial, and after the first day of tests her oncologist called to have her come in to see him. We were saddened to learn that one of her labs, her alk. phos, was a mere 5 points to high for her start her trial.
So it’s back to square one we go. We are back on the waiting lists again for new trials, and hoping we get a call soon. For now, we wait and we pray that the answers we need will come soon. Thanks for all of your kind words and support.
Hi Wittrockj,
Thank you for letting us know about your mum starting her trial. I will keep my fingers crossed that all goes well with her tests so that she can start on Monday, and of course I will also keep everything crossed for the best possible outcome for your mum with this. Thanks also for posting your link to the trial as well. Please let us know how your mum does on this.
My best wishes to you and your mum,
Gavin
Hi Wittrockj, I am sending my best wishes and lots of luck for your Mother have a very successful turn out with her Trial. Thanks for the update and I know you will keep us posted.
http://clinicaltrials.gov/ct2/show/NCT01078649?term=AT+406&rank=1
I think this is the trial she is under…now to research..what to expect, what works, and hope find answers.
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