Starting gem/cis

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  • February 26, 2016 at 7:37 pm #91677
    grsharp
    Member

    Thanks Catherine,

    We, don’t know type radiation yet. We talked to radiologist and mentioned using spheres but she said because it was difficult to “see” the tumor (perihilar) she would not know exactly where to place them.

    Wishing You Well,
    Grsharp

    February 17, 2016 at 5:36 pm #91676
    middlesister1
    Moderator

    Hi,

    Below is a link for a thread discussing “hints’ for chemo:

    http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=13069

    My mother was diagnosed in Oct 2013 and had 3 cycles of Gem/Cis, and then after it was over, she had the radioactive sphere treatment (Y-90/ SIRT). Although we were still stable 9 months after the Y-90, we opted to do it again but this time they gave her chemo for 2 weeks before and two weeks after the treatment (this time xeloda- a pill form of chemo). We were told that the chemo makes the tumor more receptive to the radiation.

    That was in Nov. 2014. Since then, all CT and PET scans have shown No Evidence of Disease (dead tumor). We go back in March for another scan, and hope that nothing has started to grow again. We are so lucky to have all this treatment-free time. I hope your wife’s treatment combo is as successful. What type of radiation is she having?

    Best wishes,
    Catherine

    February 17, 2016 at 2:26 pm #12203
    grsharp
    Member

    My newly diagnosed wife will be starting chemo using gem/cis next week for 2 cycles (2 weeks on and 1 week of for each cycle)
    Any tips on what to expect and how to deal with side effects?
    After the 2 cycles the doctors plan to do chemo and radiation together.
    They want to give her a stronger dose of chemo first, than would be possible with concurrent radiation, so as to better treat for any unknown metastases.

    Is anyone aware of this drug combo being used along with an immune booster such as Keytruda?
    Or gem/cis along with radiation?

    As with any treatment plan I am sure the question we all have is this the best treatment available?

    I read about all the newer treatments for cancer using genetic/molecular info to craft an individual treatment. However, it doesn’t seem to be a reality yet.

    Frustrated,
    Grsharp

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