August 13, 2019 at 4:31 pm #98971
Pyrimidine is the new drug. Can’t find much info on it. It also has Gemsatabine and cisplatin in it. My platelets count was low at chemo yesterday 64000 if they go below 50000 next week they wont do the chemo. Treatment is once a week for 3 weeks then a week off. That is for 2 months then a scan. If scan shows improvement then they go to phase 2. If not they stop the trial. After 2 + years of stable that beast has gone haywire!August 13, 2019 at 2:44 pm #98968
I am glad to hear you have started your trial, but sorry you are having so many side effects. I hope they calm down or at least can be managed. What type of new drug is being added to the gem-cis? Fingers crossed the trial treatment brings you good results.
Regards, MaryAugust 7, 2019 at 2:00 pm #98956
I just started a clinical trial yesterday which contains Gemzar/Cisplatine/and another chemo drug. Side affect so far has been vomiting, fatigue. I get one treatment a week for 3 weeks then off one week. Treatment will last for 2 months then a scan, if it does not work than they will stop.July 29, 2019 at 8:44 am #98916
I wish you had had better news after the radiation treatments. It sounds like your doctors have a good next plan in mind, however.
Four years of keeping this cancer under control through treatment is a noteworthy accomplishment, and gives hope the upcoming clinical trial will also do its job. Which trial will you be enrolling in?
Take care, regards, MaryJuly 27, 2019 at 12:33 pm #98911
Well it didn’t work, my last scan shows multiple small new spots, increased growth on existing tumors. oncologist says the cancer cells
become immune to the chemo. I have been accepted in a clinical trial starting 6 August. Next week I will have multiple exams and a scan and blood tests and EKG. I already had an MRI and X-rays with nothing bad showing.
I must admit I am a bit worried and discourage after 4 years of battling this beast. It was under control with Gemzar/Cisplatin, 7 Tace procedures then radiation and Xeloda.
But, I am ready to keep fighting and hope for the best.April 1, 2019 at 7:12 pm #98393
Friday was my last radiation and Xeloda treatment. The first 2 weeks the American Cancer Sociaty couldn’t help me with a ride so I drove myself. On the last week a friend came to visit from VA and drove me to treatment. She also cooked meals to put in the freezer for me after she was gone. I feel blessed to have a friend like her. 💗
So this week I am resting when I need to. I am not feeling bad just very tired.March 26, 2019 at 10:35 am #98349
I am guessing you are almost through your course of radiation. I hope all is well, not too many side effects and that the treatment brings you the hoped-for good results.
Best wishes, MaryMarch 18, 2019 at 5:31 pm #98320
I am on day 6 of radiation and have been driving myself there every day as the American Cancer Society didn’t have any volunteers available. You get a call each day to let you know if they have a driver. I have another 9 days of treatment. At least I have free parking. So far, no side affects except for low energy. I spoke to their nutritionist today and she told me I should eat 1600 calories a day. I lost 12 lbs since before Christmas mainly due to eating Lean Cuisine as I fractured my right arm, than had a TACE procedure so my appetite went down and has stayed down. I don’t mind losing weight but she said my body needs protein to deal with cancer. I told her I still have reserves of fat as per the chart I should weight 172 at most so I am still 10 lbs overweight. I am hoping this treatment will work.
The other 2 existing tumors have been without chemo since 31 January and am not sure how they are doing. I am hoping Xeloda affects them too.
!March 6, 2019 at 7:37 am #98272
I hope your treatment goes smoothly and pushes back the cancer.
It is good to look for ride options. In my community, a new service is just now being established to help seniors with rides to medical appointments using trained volunteer drivers. There may be similar programs where you live. You may want to do an internet search for “senior transportation” and the name of your town or city. Then try the search again with the name of your county and state. Sometimes these programs are managed together with other efforts such as Meals on Wheels.
Let us know your experience with radiation and xeloda.
Regards, MaryMarch 5, 2019 at 7:05 pm #98268
Spoke to my oncologiste today who is putting me on Xeloda while having radiation. He said it boost the affect of the radiations. I was a bit worried after reading the possible side affects but I will be monitored closely.
I am going to call the American Cancer Society to see if they have transport available in my area as I live 40 miles from MD Anderson and driving there 5 days a week for 3 weeks while undergoing treatment could be a bit rough. Hopefully I can handle the treatment and it will zap those nasty new tumor.
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