May 15, 2013 at 1:35 pm #71433gavinModerator
Glad to hear you are staying positive Mary, and feeling good as well! Please let us know how you get on today.
GavinMay 15, 2013 at 1:17 am #71432lainyParticipant
Mary, POSITIVE will get you everywhere! Good luck tomorrow and you know we will be sitting on pins and needles!May 15, 2013 at 12:06 am #71431
Thanks Pam & Gavin,
I did well yesterday with last SBRT treatment and feeling good today. I have my appt tomorrow with the IR and will find out if they’ll be doing a stent or drain and also when it will be done. Bilirubin was up again yesterday 19.7.
MaryMay 14, 2013 at 6:41 pm #71429gavinModerator
Like Pam I too hope that your last treatment went well and I will keep everything crossed for you for some good news and also for a stent instead of the drain.
Big hug for you,
GavinMay 14, 2013 at 2:45 am #71424pamelaParticipant
I hope your last treatment went well and I will hope right along with you for a stent.
Sending love and hugs,
-PamMay 13, 2013 at 5:42 pm #71423
Thanks Pam. I’m sitting waiting to be called in for my last SBRT treatment. Then have appt with IR on Wednesday regarding drain or stent. Looks like it will be a drain but I’m still hoping for a stent.
MaryMay 12, 2013 at 10:49 pm #71422pamelaParticipant
I hope and pray for great news from both of you, Mary and Kris. Keep your chin up, Mary. Things will get better.
-PamMay 12, 2013 at 10:01 pm #71421
Hopefully the bloating, tingly feeling will subside. Happy thoughts for June 17th!!!
If I’m doing ok in June, I would love to meet with you. I don’t eat much at this point but maybe that will be different in June. I truly hope so!!!
Definitely send that troll my way!!!!!!!!! I need him badly!!!!
MaryMay 12, 2013 at 8:13 am #71420kris00jParticipant
So far so good. My hands are feeling bloated and sore/tingly but they say it isn’t a side effect… Hope it goes away soon or I’m gonna have to say it is a side effect!
But that’s my only complaint so I won’t complain. June 17 is the big day when I find out how well it’s working. Thanks for asking: you have enough to worry about!
I’m accompanying a friend to B.R. In June for a pre hospital cert for her… Maybe you will feel up to visiting for lunch at Panera or somewhere close. Need to find out specifics. And not be working… Looking for a part time job now.
Have a good Mother’s Day. And keeping you in my prayers for your last radiation to go thru and for it to stop the progression and do some damage to those $&!!! Cancer cells! I’ll try to send my troll to visit: he stopped by the other day to eat some cancer! His favorite treat!May 11, 2013 at 8:17 pm #71419
Thanks Kris. How are you doing in the clinical trial?May 11, 2013 at 4:00 pm #71418kris00jParticipant
You have been thru a lot lately!
I pray you feel well enough to enjoy Mother’s Day. Get one last treatment in and then let the docs do what is best for you. I hope the radiation begins to work fairly quickly so you can get start to feel better.
Hugs and strength to you!May 11, 2013 at 2:32 pm #71417
Thanks for the inspiration Lainy. I am still scared with the bilirubin being so high. Also, I think I look a little more yellow today than yesterday but I’m not calling the doctor because I don’t want to be in the hospital on Mother’s Day. I’m hoping to feel well enough tomorrow to go out with me daughter. I can’t wait for Monday to come and get that last treatment in. I’m so afraid they’re going to tell me they can’t do it if the bilirubin is higher on Monday. I’m trying to stay positive!!!
Happy Mother’s Day to you Lainy and thanks for all the words of encouragement.
MaryMay 11, 2013 at 2:09 pm #71416lainyParticipant
OK is good, Mary, OK is good! Remember before you started you were leery of the treatment itself and now you only have 1 left. Good luck on the 5th one and then we hope and pray for the best news on Wednesday. You never know how strong you are until “strong” is the only choice you have!May 11, 2013 at 12:08 pm #71415
Thanks Lisa. I look forward to hearing from Betsy.
Had my fourth SBRT treatment yesterday and am doing ok. Bilirubin was up to 17.1 but they let me go home with a warning to watch things carefully and call them if anything changes – like vomiting, feeling itchy, etc. Fifth treatment is on Monday then I see the IR doc on Wednesday regarding stent or drain. I think that will be done rather quickly because of the bilirubin continuing to rise and the dark urine.
MaryMay 10, 2013 at 2:28 am #71414lisacraineParticipant
I left a message for Betsy. She is wonderful and if you need a drain, she would be a great source of information for you.
- You must be logged in to reply to this topic.