June 2, 2014 at 8:05 pm #64707evan14Member
Dawn, my wife, had her resection done in January of 2006 at Rush University Hospital in Chicago. She recently had a CT scan, – 8 1/2 years still cancer free. We hit a millstone last summer, as our oldest daughter was married, recently received news that she and I will be grandparents early next year. We sincerely thank the Clements family all of you involved in the foundation and this web site then and today.May 29, 2014 at 4:12 am #64706dukenukemMember
After eight rounds of cis/gem I went to gem only in March. Started my fifth round today. Had a CT scan in April, liver tumor still decreasing slowly, next one will be end of June. Alk-phos is steady between 130-140 and CA 19-9 runs from 50-70. Platelets are steadier too, >100,000 since mid-April. Neuropathy is markedly decreased, some toes are free of it.
DukeApril 21, 2014 at 6:05 am #64705willowParticipant
John Thomas and Patti from Illinois,
Thank you for sharing your wonderful stories! Great to hear you’re staying busy living and loving!April 21, 2014 at 1:56 am #64704patty-in-illinoisParticipant
I finished IMRT in Early November, then returned to MD Anderson in January for a PET scan. It was clear and my CA 19-9 was 10.2. Dr. Javle said I was clear to go three months with NO treatment. I came home and felt the best ever in a very long time. I just returned for a checkup after that (3 months later) and scan are still clear….no lymph nodes are bothersome to them or any concern. Tumor is mostly necrotic and inactive. My CA 19-9 at now at 11. The dr said it was the best report ever since coming to MD Anderson. I was diagnosed in Feb of 2011 and started seeing Dr. Javle in April of 2011….after going to Mayo who gave no hope whatsoever….this wasted a few months but totally worth it with the expert care I receive from Dr. Malind Javle and MD Anderson. I am biking 10 miles on some days and walked in a 5K over the weekend. Feeling better and better every minute of each day. Feeling very blessed and thankful!!April 19, 2014 at 2:57 pm #64703lainyParticipant
John Thomas, Happy Easter to You and yours! I love it when I wake up to this kind of post. I am so over the moon for you and how you progressed! We so need these kind of HOPE posts! Best wishes and continued good luck.April 19, 2014 at 12:11 pm #64702en11Member
Catherine, I stopped Cisplatin in mid-Sept. due to neuropathy. Once the platinum cleared out of my system (about 90 days) I felt much better. Less chemo-brain & fatigue. So far the Gencitabine is working on its own.
How are you doing?
I marvel that I am doing so well….going to NY Auto Show today with my adult daughters. FUN!April 19, 2014 at 6:32 am #64701John ThomasParticipant
Good Friday is always special to me. Good Friday, 2009 I officially became a member of this small club. Today, five years later, I am still a member, although slightly inactive. I have been very busy living! Despite the statistics, some of us make it through. I am so grateful for the past five years, I can’t express it.April 7, 2014 at 10:44 pm #64700middlesister1Moderator
So happy for you and thank you for sharing! It gives hope to others who are newer to this forum. Would you mind letting me know if you are still on the Gem/Cis or did they modify the chemo?
Wishing you a long, long time of continued stability.
CatherineApril 7, 2014 at 10:24 pm #64699lainyParticipant
Dear EN, WOW and YIPPEE that is just the greatest news. Please keep on letting us know about your progress, you are amazing!April 7, 2014 at 9:56 pm #64698en11Member
I have been stable since I started chemo 15 months ago. Feeling great 90% of the time.March 13, 2014 at 5:15 pm #64697marionsModerator
Thank you, Rick, for always responding to our requests.
MarionMarch 13, 2014 at 1:08 pm #64696marionsModerator
middlesister……the request has been made. Thanks much for pointing it out.
MarionMarch 13, 2014 at 10:08 am #64695middlesister1Moderator
I wonder if they can “Pin” this topic; it is a wonderful thread. Keep moving the curve!March 13, 2014 at 2:56 am #64694dukenukemMember
I just found this thread. I am a baby compared to most of you, only a little over eight months. But have great hopes to extend that indefinitely. We all beat the odds to join this club, so why shouldn’t we beat them again and shift the curve far to the right?January 7, 2014 at 7:31 pm #64693gavinModerator
Brilliant news Betsy and Cathy, congrats to you both!
And huge celebratory hugs to you both as well!
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