May 7, 2012 at 11:56 am #60248scragotsMember
I hit my 5 year cancer free anniversary on January 29 of 2012 and I am still going strong!!! Don’t let those statistics get you down. There are survivors!!!!
SueApril 29, 2012 at 10:40 pm #60247
Sandie…we are celebrating right along with you. Please keep us posted.
MarionApril 29, 2012 at 9:45 am #60246sandie-in-franceMember
Dearest friends, you are all so amazing and I have so much more hope now thanks to you all. Due for a scan on May 11th following completion of radio and chemo, post scan I WILL be celebrating my future. Love and thanks to yo all xxApril 28, 2012 at 5:16 pm #60245evan14Member
My wife Dawn was diagnosed in November of 2005, resection done in January of 2006 and is cancer free. There is hope!
RichardApril 27, 2012 at 6:28 pm #60244
Congratulations, Derin. This is a wonderful thread.
MarionApril 27, 2012 at 4:45 pm #60243pamelaParticipant
A big fat YYYYYYYYYYYaaaaaaaaaaaaaayyyyyyyyyyyyyyyyyyyy to all of you that are beating the odds. You are what give us hope!!!!!! Love to all of you.
-PamApril 26, 2012 at 11:52 pm #60242hamptonsarasotaMember
7.5 months post resection, just had a clean scan last Friday. Yeah, what Betsy said! I’m with her too!!April 26, 2012 at 7:58 pm #60241
I believe that it has always been the motto of this board that someone has to be in the upper portion of the equation. There are many things we don’t know, but we know for sure that not everyone will have a recurrence.
MarionApril 26, 2012 at 2:09 pm #60240RandiParticipant
Diagnosed with CC 11/2009, Whipple 12/2009, Chemo 2/2010 – 7/2010
Still kicking 4/2012
There is hope and no one should give that up. Hang in there!April 26, 2012 at 1:43 pm #60239sandie-in-franceMember
Dearest friends, thank you for your responses, all of which give me great hope for a long future. I am with Betsy, we re going to make up that small percentage. I believe my tough attitude and sense of fun has held me in good stead and will do in the future. I persuaded the radiographers to put up a picture of Brad Pitt next to Shrek on the ceiling of the radiography room and I know this small thing has put a smile on the face of many adults having radiotherapy. But I also know from my experiences that you cannot be tough all the time and it is during those times that I have strength in reading the amazing stories on the site. God bless you all and thank you. XxApril 26, 2012 at 1:16 pm #60238lainyParticipant
Hi Betsy, AMEN to your post! You are a beautiful Miracle!April 26, 2012 at 10:59 am #60237betsyParticipant
I had liver resection Jan. 2009 and am still cancer-free. While recurrence statistics are discouraging, not all CC patients have a recurrence…someone has to make up the small percentage number who do survive….may as well be us.
betsyApril 26, 2012 at 4:23 am #60236mlepp0416Participant
During my husband Tom’s journey, the stats go something like this.
1 in 200,00 present with Cholangiocarcinoma
of those 5% are elibible for resection
of those 1% will experience a re-occurance
It is a rare cancer. My Tom was a rare kind of guy and he hit all of those stats. Per the research that I did, a liver transplant for CC patients is very rare because this cancer can, will and does re-occur, even with a transplant.
Liver’s are ‘hard to come by’ so they do not like to do transplants with a CC patient because studies have shown that even with a transplant the CC can re-occur. And, even with a transplant, studies have shown that the life expectancy does not change with a transplant. The studies that I read stated that transplanting a liver into a CC patient does not change the 5 year survival rate.
Sad, but oh so true. My Tom fought the battle of his life and his battle ended after 3 years and 8 months. My only hope is that the doctors and oncologists are learning more about this cancer and how to fight it and to increase the odds!
I think that one should not focus on the stats, just keep the faith. Tom never gave up but eventually his body just started shutting down, he fought till the very end. And the doctors can be wrong! They gave him less than 6 months and he lived almost 2 more years to the day. I was grateful for every day that we had for those 2 years.
Go with God and KEEP KICKIN’ THAT cancer!
Love and Hugs,
MargaretApril 25, 2012 at 10:30 pm #60235pcl1029Member
To answer your one question;
The answer is :The chance of recurrence is high even after resection(>65%).
God bless.April 25, 2012 at 6:52 pm #60234gavinModerator
Welcome to the site. I am sorry that you had to find us all but I’m glad that you’ve joined us all here as you will get tons of support and help from everyone here. You sure have been through so much in the last 6 months and thanks so much for sharing your story with us all. I can imagine that it must have been made so much harder for you with your French being limited, but from what you have said, it sounds like your sense of humour is good and you do indeed sound very strong still. Your strength and a positive attitude will do you much good throughout.
As Lainy syas, we can’t know an individuals chance of recurrance. Please continue to stay strong and be positive and know that we are all here for you. I’m sure that you will have other questions over time and feel free to ask them here and we will do what we can to help in answering them. And I hope that you will keep coming back here and please let us know how everything goes for you. We know what you are going through right now and we care.
My best wishes to you,
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