Tell me your story about your diagnosis

Discussion Board Forums Introductions! Tell me your story about your diagnosis

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  • #7637
    lostandscared
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    My boyfriend was diagnosed with primary schlerosing cholangitis (PSC) 3 years ago. He has been under supervision since then. Ultrasounds to screen for cancer. This August, he got an MRI to follow the PSC. They found he had cholangiocarcinoma (CCA) that went undetected by all the ultrasounds. The day he got that phone call was the day our worlds changed forever. Now everyday is defined by cancer. It’s inoperable. I’m sick about it. I’m a physician and thought I did everything I could to prevent this. I am reading all these stories of people with CCA. I thought it was mostly PSC patients that got this disease? How did you get diagnosed? How is it possible that we can catch this disease earlier so people can beat this?

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