Thank You
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Johanna…..I can’t think of anyone (on this board) possessing prior knowledge of this disease. This is considered to be a rare cancer and it progresses without any particularly recognizable symptoms. Once we are confronted with this cancer it quickly leads us to some “on the job” training. It really helps to become informed because; it will empower you to make informed decisions. And, try to stay positive and realistic. (With heavy emphasize on the positive.) Hang in there. As our Kris has said and others have mentioned often: YOU DON’T HAVE AN EXPIRATION STAMP ON YOUR SOLES. So there, get out your boxing gloves. You will have tons of support coming your way.
Best wishes,
MarionJohanna,
I would just also suggest that you get a good notebook and document everything! I am on my second one now, a friend of ours suggested it to me and it has been very helpful. Again, thinking and praying all goes well for you! Take care!! JennyJohana,
I am a librarian and this site really is like The Encyclopedia of Cholangiocarcinoma. I am glad you are finding the information you need.
I would ask your doc about something to stimulate your appetite and something for the depression, others have said it was very helpful.
Patty
Hello Everyone,
I just can’t stop reading on this site! I just realized I know nothing about my CC. It was only diagnosed from pathology slides-I don’t know what stage. I have not had a C9-19.
The MRI only shows the 10cm liver tumor. I am beyond overwhelmed with this and have no appetite. I am also very depressed.
I am a type 2 diabetic (my blood sugar is great now that I have lost weight).
Thanks for listening to me.
Johanna
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