The time has finally come…
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So sorry to here about your mother Ashley. We had at home hospice when my mother was dying of lung cancer and it was a wonderful. They we available by phone all the time and they made sure we had all the equipment and support we needed.
My thoughts and prayers are with you and your mother at this difficult time.
Hugs
-Randi-Ashley…I am so sorry to hear the news. Ashley, I would advice you not to have your Mom released unless her pain has been controlled in the hospital. Hospice will be able to take over from there. My heart is with you in this difficult time.
Love
MarionDearest Ashley, I am so sorry to hear this and that you have to go through this and that your Mother is in so much pain. In Home Hospice was terriffic with Teddy and he had total pain management until I admitted him to the Hospice facility. That last 4 days was inhumanely painful only because they did NOT give him his proper medication. I would have the doctor order Hospice and they will be out the next day. I like what they did for Pam’s mom, a patch and a liquid morphine. The only thing I will say about that is…..looking back I would have taken what Morphine I had left and plied Teddy with it at the end. Again, it was so bad as they gave him almost nothing. By the way we are working with an attorney.
With all that said, I am sure if you keep vigilent Mom will be just fine. It is a time to make a few more precious memories and I remember some of Jen’s stories and it brings a smile to my face. Let Mom know how much you love her and that it is OK to let go when you feel the time is ready. Don’t fret about food or anything else for her as the bottom line is just NO pain. Ask Hospice for their booklet on dying, it is excellent and they give you kind of a schedule of things to look for. We are all here for you and again sorry you and your Mom are having to take this journey.Ashley, so sorry to hear about your mom’s condition. I hope she will soon be out of the hospital and resting comfortably at home. Will Hospice be using morphine patch/pills? I agree with Jennifer when she said to stay on top of the pain. We continually used both in my dad’s final week and he was not in pain. I’m thoughts and prayers are with you and your mom.
Ashley – I am so sorry to hear the news. After seeing Dad go through his final weeks and days, all I can tell you is to be with her, tell her you will be okay, and let her know how much you love her, as often as you can. As for pain… Dad was in quite a bit of pain until his final week or 2, at which point they did manage to keep in under control. Hospice will have the ability to keep him comfortable, just stay on top of it. The second Dad cried out or seemed even slightly uncomfortable, they gave him something. There is NO need for her to suffer.
I will be thinking and praying for you in the days to come. It’s a hard time, but you find strength from somewhere to handle it. I hope more memories can be made and you have some quality time left with her.
Love and positive thoughts.
Jen
It’s been awhile since I’ve posted and the rollercoaster ride of CC, but here I am again. Just when we were told that there was no more cancer and a successful but slow recovery of a liver resection, it happened again. On July 6, 2011, mom was taken to the ER and had emergency surgery due to a small bowel obstruction. It had completely closed up. She had been vomitting for four days and kept getting worse. She has been in the hospital since. We “thought” this was the reasoning for her not getting any better and this surgery would do the trick. As of Saturday, her sugeon told us that when she was so sick and had the small bowel obstruction, it cut off the blood supply to her liver. In return, 30% of it had died. Her bilirubin, ammonia and all the other markers for liver function keep continuting to rise. He said that there is necrosis and another CT scan was done today to confirm that the liver is continuing to die. She has slept alot over the past 3 days, been in tremendous pain, even with the dilaudid PCA pump. She talks in and out of which we are used to since her ammonia levels have been in the hundreds lately. Dr. said that we will be going home with hospice as there is nothing else that he can do. I have been on this website for awhile now, and read many stories of what its like at the end. I’m so afraid so she will be in pain. Any thoughts, advice, insight, words of encouragement would be greatly appreciated. Everyone here on the CC website has been a tremendous support system. Its amazing the comfort I’ve felt here, never meeting a single one of you. God Bless!
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