The waiting game

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Viewing 15 posts - 1 through 15 (of 20 total)
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  • #17644
    peter
    Member

    Jeff,

    Nuclear bone scan, I’d better get your back,. Heck….we’ll both just get bullet proof vests!

    Bone scans beat a set of labs anyday, aces and kings versus a pair of 2’s. I hope they don’t find anything other then some simple way to help with the pain. My CM guy keeps telling me it’s just “time and gravity Peter, working on all of us”.

    As for Maine the lobster men don’t make you pull your own pots anymore so as long as you can pck a lobster with your right hand you may be all set.

    -Peter

    #17643
    fatherson
    Member

    Peter,

    This is a good time to remember the message of your avatar. I think you said very well when you wrote: “One silver lining is that when your heart is on your sleeve like this you also can’t help but really feel the love around you.” You’re in my prayers.

    Richard

    #17642
    jeffg
    Member

    Hi Peter, I’d say I got your back coverd but it don’t work in this situation. Hope your labs come back ok. I’ve got Nuclear Bone Scan Thursday at 8:00 A.M. Hellacious pain in left shoulder joint. Regular xray showed degenerative activity in joint; but heck that comes with age. Kinda puts the binders on popping up to Maine this Month.
    Take Care!
    Jeff G.

    #17641
    peter
    Member

    Kris,
    May the MRI ease your fears! We’ll all be with you this week.

    I think all of us feel like emotional yo-yo’s some of the time. I can be feeling great one day and scared to pieces (potty mouth temptation on that one ) the next. One silver lining is that when your heart is on your sleeve like this you also can’t help but really feel the love around you. And sometimes we all need to put the walls up to get through the day or get a break…………

    I’ll have new labs this week, results late Thursday. Sometimes I’m nervous, this time I’m scared.

    #$% @#%!% disease!!!!!

    -Peter

    #17640
    devoncat
    Participant

    Thanks Everyone!!! No Jeff, I know no Swedish potty mouth, but I do believe that will be my next lesson!
    I appreciate all your responses. It is just a horrible thing to worry and not understand what is happening. My husband had to go away for a couple of days, so I just picked up my bags and went to Glasgow for the weekend. It was just what I needed. I have missed it since I moved to Sweden and I spent some time with my friends who basically babysat me. Just being in a country where you can eavesdrop on the conversation next to you was refreshing and relaxing. Plus, the Glaswegians are known for their sense of humor and laughter is a great tonic. I feel so much better but I am heading back to Sweden today for the new scan this week. Hopefully this feeling will last and I will be laughing and fiesty at the doctors-my surgeon loves it when I am fiesty (honest!). Thanks again for everyones kind words.

    #17639
    marions
    Moderator

    Kris,
    I am following the others. Tons of good wishes coming your way. Can you feel it?
    Hugs
    Marion

    #17638
    stacie
    Member

    Hang in there Kris.

    Always, the days after the scan (waiting) and the day we met with the Dr. about the scan were the most stressful.

    We are all thinking about you. Jeff’s right… I think the strength comes and goes. It’s much easier to be strong for someone else than for yourself – at least for me. We’ll be strong for you, you just cry until you can’t any more and then take a deep breath.

    Stacie

    #17637
    jeffg
    Member
    devoncat wrote:
    Well, I got my results…sort of. The ct scan was “not readable”. I could really have some potty mouth right about now. Did they not know it was unreadable when they took the scans? My fear is that there is something they are worried about, but are not clear if it is something they should be worried about. Does that make sense??? So they are having me do an MRI next week with my lovely doctor meeting me there to see the scan and to give me the results immediately.

    Needless to say, I have cried. I dont know where you guys get your emotional strength, because I sure as muffins dont have it. Maybe the MRI will show nothing, maybe the CT really was not readable. I dont know. All I know is that I am scared and I am tired. Nothing was said about my bloodwork either. I will need to ask Hans to ask my doctor about those as well. He is emailing my lovely doctor now to see if the scans are really unreadable or if there is something he wants a better look at. I am babbling I know but I am terrified.

    Kris

    Hi Kris….. Do you know any swedish potty mouth? If you can write them in swedish we wouldn’t know. Sorry about your scans being unreadable. I guess you can look at it as MRI’s are a better tool for ruling out any problems. I’m sure you would like a clear picture rather than a foggy one. I wish I could say something to put you at ease a little, but you know what your up against and it is scary no one can deny that. Kris a prayer of support coming your way.
    Jeff G.
    P.S. My emotional strength is just a cover.; we all have tears.

    #17636
    scragots
    Member

    Kris,

    You have been on my mind. Try not to worry, until there’s something to worry about. I know it’s easy to say but I have had my share of scan screw-ups. It does happen, so you just have to believe that for right now. And, of yes, I cried all the way home after the last screw up. We don’t have to be ultra strong all the time. This is our LIFE we are talking about. The mere thought of losing it is enough to send me into weeping fits.

    The time will be here before you know it. I am sure your husband will be able to get some reassuring news from your doctor. And thank goodness your doc is meeting you this time. When is your scan reschedule for? I will be thinking about you, crossing my fingers and sending up prayers and wishing you a peaceful mind until then.

    Sue

    #17635
    glightfoot
    Member

    Hi Kris,

    We’re all in the same boat with you. We’re all scared at times and cry frequently.

    If you can possibly do it, assume unreadable only means unreadable, heave a big sigh at how untogether those people are and just carry on with your life until you have your scan done properly.

    Hugs,

    G

    #17633
    sara
    Member

    Big hugs to you, Kris. My thoughts and prayers are 100% behind a truly unreadable scan. I’m glad that your doctor will be there next week to give you the news immediately. It’s just mean to make you wait any longer than you have already done.

    #17634
    devoncat
    Participant

    Well, I got my results…sort of. The ct scan was “not readable”. I could really have some potty mouth right about now. Did they not know it was unreadable when they took the scans? My fear is that there is something they are worried about, but are not clear if it is something they should be worried about. Does that make sense??? So they are having me do an MRI next week with my lovely doctor meeting me there to see the scan and to give me the results immediately.

    Needless to say, I have cried. I dont know where you guys get your emotional strength, because I sure as muffins dont have it. Maybe the MRI will show nothing, maybe the CT really was not readable. I dont know. All I know is that I am scared and I am tired. Nothing was said about my bloodwork either. I will need to ask Hans to ask my doctor about those as well. He is emailing my lovely doctor now to see if the scans are really unreadable or if there is something he wants a better look at. I am babbling I know but I am terrified.

    Kris

    #17632
    lselby
    Participant

    Dear Kris,
    Now my turn to help you! I am a medical provider also. IT IS YOUR RIGHT1 You sometimes have to be a little ascertive as Jeff said, to get things done. And he is right! What would that person do if the shoe was turned. Let your Doctor know that you would greatly appreciate recieving the results of your tests in a timely fashion, and would gladly sign any release of information paper work so that you can obtain a copy of your report. I am not sure about Sweden, but in US, scans are read immediately.
    Hope this is helpful,
    Lana

    #17631
    carol58
    Participant

    Good luck Kris and sleep well!

    Carol

    #17630
    devoncat
    Participant

    Thanks everyone. It is just so different here in Sweden. I am not even sure who is getting my results, my oncologist (who I believe is the devil in disguise) or my lovely surgon who is technically in charge of my case. To make matters worse, I did not have the scan at a hospital where either of my doctors is based-but in a small hospital an hour away because they had the soonest open appointment.

    I will have my wonderful husband try to contact the lovely surgon and see what the deal is. One day my Swedish will be good enough that I can do these things myself, but I am not nearly there yet!

    I appreciate everyones kind words. I will do my best to stay positive and be a little pushier. It is so hard to be your own advocate when you are scared of being rude. That is something I must get over. I feel better for my rant and all the good advice and understanding you all have given me. I will pop a sleeping pill tonight so there will be no middle of the night moaning and complaining from me.

    Thanks again everyone!!
    Kris

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