There is a cure
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When ever there is a transplant post I always need to chime in, even if I have nothing new to add, but just say again and again it WORKS!!!! I just did my 3 years on May 24,2012 and July 5, 2012!! I think Wayne and I would have to flip a coin to decide who is Dr. Chapmans biggest fan!!!
Wayne, thank you for putting his name out there again. I am also very excited that on July 25, 2012 I have been invited to a lecture and reception for Dr. Chapman, maybe I will see you there!!??.
Lots of prayers for all my CC family-CathyMaria: thanks for pointing out that transplantation option is available in Sweden. I added a correction to my post.
I would like to add that transplant IS an option in at least Sweden, at the transplant-unit at the Sahlgrenska University Hospital (where I am being treated) but with more or less the same criteria as in the US.
//MariaHi Eli,
Thanks for your info on this. And off the top of my head, I am pretty certain that transplantation is not even cosidered here in the UK as a treatment option for CC. Hopefully one day though this will change for UK, Europe and elsewhere etc. Fingers crossed.
Best wishes,
Gavin
Percy and Eli, I just want to say, “Thank You”. The advise and the information that you give this Board may not always be what we want to hear, but by jove we have you looking out for all of us! It is so important for members to feel secure with their situations and they do, many thanks.
Hi,
Thanks Eli to clarify the situation.
The latest stat for successful liver transplant is 68% for CCA patients from Mayo clinics,and as you all know, that is referring to the 5 year survival rate. They did not say it is a cure.
As all of you know on this board, we have a young member did not have the successful outcome as mentioned.
God bless.Hi Wayne,
You asked:
Quote:Is everyone aware of the work of Dr. William C. Chapman at Washington University in St. Louis and Dr. Steven Rosen at the Mayo Clinic in Rochester Minnesota?I believe so. I don’t think we have a single member of this board who is NOT aware of the transplant option. The problem is, only a very small number of CC patients can meet the acceptance criteria of the transplant protocol.
This is my understanding of where things stand:
* Intrahepatic CC patients are currently not eligible.
* Patients with metastatic disease or positive lymph nodes are not eligible.
* Extrahepatic CC patients who qualify for a regular resection are not eligible for a transplant. This is despite the fact that transplant promises a better survival rate than a regular resection. This restriction is due to the shortage of transplant organs.
Once you exclude all of the above, you are left with a tiny minority of patients. Namely, extrahepatic patients with a localized disease (no mets or positive nodes) who cannot have a regular resection for some reason.
The last but not the least, transplant option is not available anywhere outside the US. International patients don’t have this option available to them. CORRECTION: transplant option may be available in some countries outside the US. See Maria’s post below about transplant availability in Sweden.
The bottom line:
Liver transplantation is the closest we have to a cure. Unfortunately, it’s not a universal cure available to all patients.
Best wishes,
EliIs everyone aware of the work of Dr. William C. Chapman at Washington University in St. Louis and Dr. Steven Rosen at the Mayo Clinic in Rochester Minnesota?
“Efficacy of Neoadjuvant Chemoradiation, Followed by Liver Transplantation, for Perihilar Cholangiocarcinoma at 12 US Centers.”
Darwish Murad S, Kim WR, Harnois DM, Douglas DD, Burton J, Kulik LM, Botha JF, Mezrich JD, Chapman WC, Schwartz JJ, Hong JC, Emond JC, Jeon H, Rosen CB, Gores GJ, Heimbach JK.
SourceWilliam J. von Liebig Transplant Center, Mayo Clinic, Rochester, Minnesota.
They have a cure that so far shows a 70% recurrence free survival at 5 years if you make it through the program. They are also innovating new treatments for what were previously patients who could not qualify for their main program. Please spread the word. Many doctors and hopsitals will not tell you about this work that has been available for over 10 years. Call me if you want to discuss this.
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