Total resection

Missy,

I want to welcome you to our “family” and echo Katie’s opinion that this is the “best support board in the world”. We do have world-wide members and the knowledge we exchange is tremendous.

Also, my experience is similar to yours in that I had the entire left lobe removed (+ some of right for a total of 40%) and many lymph nodes and gallbladder removed. My surgery was April 1, 09 (April Fools Day), and I was back to work in 8 weeks. More than a year later, I still have an area that is numb, but I know from a previous c-section that it happens, and you will experience many feelings there as the nerves heal and all that was done inside also heals.

Congratulations for being cancer-free! Keep up the fight and continue with your doctors being diligent on follow-up CT scans. Early detection is a very big weapon against this cancer.

Dale…..congratulations to you too for being cancer-free for 6 years! It really does give us all tremendous lifts to hear these kind of stories.

I’ve seen many doctors give differing opinions of treatment. My onc. has said there are a number of chemo meds that they treat this cancer with. So it doesn’t necessarily say that one is better than the other, it just depends on how your body responds to each one (and each of us reacts differently). Don’t get discouraged if one regiment doesn’t work, because there are a number of them and maybe you will respond to the others.

An observation that I have noticed is that many Drs. are more aggressive in their treatments. I was on Gemzar / Cisplatin for 3 months and then Oxalyplatin / Zeloda for 3 months, when it seems others have been on a higher dose and for longer time. Is one better than the other? We just don’t know. I am waiting for a referral to get my next round of CT scans done, so I will see what happens next.

Everyone just needs to become aware and educated, because it CAN change everything if you know as much as you can. Also, I feel that it helps if medical staff knows that YOU are educated in treatments too.

Linda Z.

Dale—reading your post just now gave me a little lift—-today has been a really bad day….Thanks.
Do you mind telling me how long your radiation treatment was? And was it done as an adjuvant therapy?

Which chemo where you on?

I have got to figure out how to continue to live life while being so overwhelmed by all this.

Thanks again

Snezzie

Sneezie
Thanks for posting. I’m sorry to hear that u have 3 different Drs that are not on the same page. My surgeon who is at Mt. Sinai in NYC recommended my oncologist to me it was never a question who I would see and I feel I’m in excellent hands he to is in NYC not far from where The World Trade Centers were. I’m handling the chemo well no nausea, no hair loss, very surprised at that but I was prepared to deal with it. I have a double port-a-cath in my chest on the left side I go 2 days in a row take home a pump for overnight chemo. Thanks for addressing the rumbling underneath my scar it makes total sense, sometimes it is numb and tingly. The only thing I’m very sure of is that chemo is essential after surgery maybe there is someone on this site who knows of an ocologist who has treated patients with CC in your area. Please keep posting. Thanks Nancy

Hi Missy and Sneezie
I was diagonosed with intrahepatic cc in Oct 09. This is a little bit odd but I had surgery on Jan 19,2010 also. I had my right lobe removed 2 lymph nodes 1 positive for ca the other negative and my gallbladder. I’m now doing 6 month adjuvant chemotherapy receiving 5 different drugs I know I am being given gemzar, oxaliplatin and 5-FU I believe that is fluourinol plus 2 others I go 2 days in a row and then have a week off. Had a clear Ct Scan in April and go for follow up at the end of July. Please keep posting both of you. Snezzie how long r u going for chemo and Missy how long was your chemo? Both of you as well as everyone on this website who is dealing with this disease in some way is in my thoughts and prayers everyday. Missy I know what u mean about thinking something is going on inside your stomach lots of weird feelings, and pangs I to am anxious about these things but as my PA tells me I’am healing from a major surgery and should expect these things. That does make me feel a little better. Nancy

Hi Missy,

May I send a huge welcome to the best support board in the world!! Not that I am biased or anything…

Congratulations on your recovery. Please come back here often and update us.

Katie

Hi Missy and welcome to our family, you made my day! YEA! Another survivor. Your attitude is fabulous and I have a feeling you scared that sucker away. Good for you. Keep up the good work. Don’t know if, after having CC that the fright ever does leave. You might want to ask our Dr. Giles at the top of the page if he has any suggestions. Just type his name in the search engine. I bet some other family members are going to come along as well and offer some sage advice. Are you following a regime with the Oncologist? Please don’t be a stranger and let us know how you are doing.