Tough news today

I had an appointment with Dr. Gores at Mayo this afternoon. This is the first appointment with him since September 2009 when I left Mayo. As he was reviewing my local treatments, he brought up the CT scans that I had locally and within a few minutes said that something didn’t look right and found an approx. 4cm tumor in the right lobe. This was apparently missed by my local radiologist on the 3 scans that I’ve had locally since September 2009.

How could he have just missed a 4cm tumor? And how could Dr. Gores have just found it after less than 2 minutes? I’m so frustrated.

So now, I have omentum/peritoneum mets, a large liver met, and the primary klatskin tumor. This can’t be good.

The other frustrating part is that if we had know about this months ago (should have!!!!) then we could have changed up the treatment plan to something that may have worked better. Instead I have stayed on a chemo combination that was not doing any good because the radiologist wasn’t reading the scans right.

I feel ripped off, cheated, and lost. I desperately want to hang onto every week that I am given and this monumental f*** up has probably robbed me of more than I want to even thing about.

Rick