It is so deja-vu to watch this, it has been 2 years since I heard those words from Dr. Chapman at Barnes-Jewish in St. Louis MO. At the time Barnes and Mayo in Rochester were the only ones with this clinical trial. At the time all my brushings were sent to Mayo for final diagnosis of cholangio.
Now that we are finally in recovery, we realize just how lucky we were. When I was diagnosed, being terminal wasn’t discussed in any length, a liver transplant was going to save my life. My diagnosis was made with so much hope and positiveness, I only know now how lucky I was. It is still surreal to me that this disease has such a bad prognosis. I wish everyone could have this option. Cathy