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Treatment Has Begun // Week 1

Discussion Board Forums Introductions! Treatment Has Begun // Week 1

Viewing 15 posts - 1 through 15 (of 116 total)
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  • #93452
    hopeseeker
    Participant

    So very sorry for your loss. Hearts and prayers going out to you and your family, Joe.

    #93451
    chinesechick
    Participant

    Dear Joe,

    I’m so sorry to hear about your mom’s passing. Please accept my deepest condolences.

    I lost my mom to this terrible disease on Nov. 16, just 8 short months after she was diagnosed. I know the pain you are going thru. Please take care of yourself.

    Nancy

    #93450
    debnorcal
    Moderator

    Dear Joe,

    I am so very sorry to read that your mom has passed. Please know that you and your family are in my prayers.

    #93449
    iowagirl
    Member

    I’m so sorry, Joe. My prayers are with you and your family.

    Julie

    #93448
    bglass
    Moderator

    Dear Joe,

    Please accept my condolences and prayers at this difficult time. You and your family did everything in your power to help your mom face and cope with this terrible illness, and bring her comfort and peace.

    Regards, Mary

    #93447
    middlesister1
    Moderator

    Dear Joe,

    My heartfelt condolences are with you. With My Dad, we had one night in hospice which was a blessing for us too. It allowed us to step back from caretakers and just be there to be family members. It was very important for Mom.

    You are in my thoughts and prayers and please know that we are here for you.

    Thank you for taking the time to let us know.

    love,
    Catherine

    #93446
    darla
    Participant

    Dear Joe,

    You have my deepest sympathy for the loss of your mother. I’m am so glad that you as a family were able to spend Mother’s Day and also her finally moment’s with her. There are no words to ease the pain you are feeling right now, but in time I am hoping for the pain of loss to ease and good memories help to comfort you and your family. She will always be with you in your heart and those memories. Take care and know we are here to help and support you in any way that we can.

    Love & Hugs,
    Darla

    #93445
    marions
    Moderator

    Dear Joe…..please accept my most sincere condolences on the loss of your dear Mom. Know that she will never be forgotten on this site and in our hearts.

    You and your Mom are an example of fighting this disease with all you have. No stone was unturned and you gave it your all.

    I am grateful that you were able to be with her throughout the last days and her ultimate passing. What a beautiful gift this was for you and your family.

    Please take care of yourself, dear Joe, and know that we are here for you, always

    Hugs and love,
    Marion

    #93444

    FINAL UPDATE

    To all of you at the foundation and on this discussion board we are forever grateful for your outpouring support over the last 6-7 months. My mother spent 2 nights in Journey Care in Barrington which was an absolute blessing and gift. We spent Mother’s Day with her bedside, shared stories, cried, laughed and smiled. My mother Deborah Jean Lutz took her step into her next life this morning at 10am only seconds after we completed a prayer alongside her. This road has been the most difficult I’ve ever experienced, never did I think I would lose my mother at the age of 33. This road wasn’t always easy but I never felt alone and this discussion board and all of you are very much the reason for that. Thank you from the bottom of mine, our family and most especially my mother’s heart.

    This experience has taught me a lot and will continue to reveal many hidden gems I’m sure but I wanted to make the time now for all of you and all the health care professionals that put my mother and our needs first to know that it was never taken for granted.
    God bless you all!
    Joe

    #93443
    marions
    Moderator

    Joe….so glad to hear you are able to work with the external drain, pain is under control and your are able to spend precious time with your Mom.
    Please know that hospice care does not mean that death is imminent. There is a good chance for your Mom to stabilize and have a good quality of life.

    Debbie has raised a fine son and she must be so very proud of you.

    Please know that we are here for you, always.

    My heart is with you and your dear Mom.

    Hugs and love
    Marion

    #93442
    middlesister1
    Moderator

    Dear Joe,

    We started much too late, but Dad liked that we bought a small digital tape recorder to allow him to record thoughts or stories, or just leaving it recording while we sat around the kitchen table chatting.

    I am do sorry you are at this point. Please tell Debbie that my thoughts and prayers are with her.

    I wish I could do more.

    Love and hugs,
    Catherine

    #93439
    hopeseeker
    Participant

    Joe,

    My MIL was diagnosed at the end of March at stage 4 with mets in her pancreas, gallbladder and the lymph nodes surrounding those organs are also affected. Dr favor her 3-6 without chemo and 9/12 with chemo. She is on two 30mg slow release morphine a day with breakthrough pain meds to take in between. She is currently taking chemo-Oxaliplatin by injection, but her white blood counts and platelets are now low.

    I didn’t know they would give blood transfusions to boost those, but I now know that may be the case soon due to reading your posts about your mom.

    I am so sorry your mother has had such a fight. This seems to be a VERY fast moving cancer and the loved ones are left in shock at how fast it can progress and leave us feeling helpless. As family we just keep loving and moving forward to keep them comfortable and cared for.

    This I all so new to us and we are taking it one day at a time. Prayers for you and your mother today.

    #93441
    darla
    Participant

    Dear Joe,

    I am glad that you now have hospice involved. It will be of great help and support to you. I truly know how you are feeling. My husband died at age 62 and we only dealt with this for 2 months, so I know all the things you are feeling. Spending quality time with her as much as you can is all you can really do for her at this point. I found this board shortly after Jim died and like you am so grateful for all the help and support I have gotten from everyone here. No one can understand what it is like to deal with this awful disease other than those who have walk the same road. I stay because I hope I am giving back some of what I have gotten. I too pray that the day will come when this disease will be conquered. I will keep you and your mom in my thoughts and prayers.

    Love & Hugs,
    Darla

    #93440

    UPDATE:

    We’ve enlisted hospice who have been on board for almost a week and a drain has been installed in my mother’s abdomen. I’ve personally been able to drain her to relieve her of pressure and pain and we’ve started her on morphine for pain. I now leave work early in the afternoon to make/have dinner with her and have started working remotely on Fridays to have a longer weekend with her. I’ve never felt so numb in my life before and I truly have no idea where the last 6 months have gone. I can’t thank you all enough for your continued thoughts and prayers for my mother Debbie and our family. This discussion board has truly been light for a mostly dim lit situation. This disease is truly awful and it pains me to read all of those who are suffering from it and I commend every single one of you for your love and compassion and pray that one day we’ll find better treatment and maybe even a cure for this disease.

    Thank you
    Joe and His Mom Debbie

    #93435
    middlesister1
    Moderator

    Dear Joe,

    I’m sorry it took me so long to see this. Unfortunately I have no suggestions for treatment, but do want you to know although much too inadequate, you and your Mom are in my thoughts and prayers. We just lost Dad a few months ago to lung cancer, and we involved hospice early which was a very good thing. However, by that point we knew he physically would not be up to further treatments.

    Lots of hugs,
    Catherine

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