December 27, 2016 at 3:13 am #93363
ONE OTHER NOTE:
As I continue to do my research I find it very weird that my mother hasn’t experienced any jundice whatsoever. It makes me want to ask more questions and challenge her doctor as the only cancerous tumors they’ve discovered thus far on intrahepatic or on the outside of the liver on both lobes. They did mention though that they saw build up of what they think is meta activity in her abdomen lymph nodes but feel as if they should’ve biopsy that before determining that this was CC. I could also be tired and delusional in telling myself that maybe they misdiagnosed her and that I’m just dreaming all of this up. I only say this because if it was determined that the cancer hasn’t spread to her lymph nodes that maybe a transplant could be an option….again I’m just speaking out loud and partly in frustration with my mother’s current doctor and medical facility. I feel like others on this discussion board had much more of a team then she currently has. I could also just be reading and watching too much on the web and driving myself crazy but thats what a son is suppose to do for his mother…..just looking for any other signs of hope in all of this.December 27, 2016 at 3:02 am #93362
Christmas was wonderful, truly never wanted the day to end. Reality was quickly back into the mix as chemo started back up today. All went well and my mom is back on the chemo train to fight and hopefully shrink some tumors to help with pain and have her here a bit longer than most have anticipated. My emotions yesterday driving home was gratitude for this time with her mixed with full on agony, my tears were heavier than ever thinking this could be the last time we exchange love on Christmas and it shatters my heart to even try to stomach.
All this aside she’s back to fighting and I pray that this time she doesn’t end up in the hospital with low blood counts again as I’m sure it’ll wear on her and put the plan in jeopardy all together.
If anyone has a good diet plan they had created while on chemo and would love to share that would be helpful. I’m trying so hard to get my mother to eat as healthy as possible but she doesn’t have much money and I can’t always be there for her to cook healthy food for her. It is a struggle and I’ve even started a weekly delivery of healthy foods for her that shows up every week to assure this can happen as I know nutrition and overall attitude is the success to the best results.
As always thanks to everyone who continues to pray for my mother Debbie, your prayers mean the world to us and I know this would be miles harder to go thru without all of your support. Thank you and Happy Holidays!
JoeDecember 18, 2016 at 11:43 am #93361middlesister1Moderator
Thank you for sharing. Being home for Christmas is wonderful news.
If there are any positives that have come out of having loved ones with cancer, it may be that we treasure each holiday with family even more.
Best wishes and Merry Christmas,
CatherineDecember 17, 2016 at 10:55 pm #93360
Joe….wonderful news. Wishing for a happy holiday and a well deserved relaxing time for all.
MarionDecember 17, 2016 at 5:09 pm #93359
I totally agree with you Lainy! Thank you so much for all your love and support! Merry Christmas!December 17, 2016 at 5:06 pm #93358lainyParticipant
Thank you for the update, Joe and glad your Mother is home. Have a wonderful family Christmas and I am sure that will be the best RX she could have right now!December 17, 2016 at 5:02 pm #93357
Sorry for the lapse in an update. Monday my mother was released from the hospital which was wonderful news to all of us! Her body was making the needed WBC and platelets for them to approve releasing her. So again thanks for all your prayers it’s wonderful to have her home!
Met with the doctor on an updated schedule since she has missed what will be 2 round of chemo Monday and they have suggested a lower dosage and starting back up on the 26th of the month. They mentioned that they couldn’t fit her in any sooner which was a bit frustrating to here given that I’ve read many stories about missing scheduled chemo and the effectiveness lost when a lapse in time has taken place.
Regardless we’re all very happy to have her home. Only thing she battles is night sweats and swelling in her legs which they are saying is from all the IVs she received when she was in the hospital, as of now her swelling is only that of a visual discomfort so they don’t seem worried about it at all.
Looking forward to Christmas together as a family. Thanks again for all your prayers. I’ll post an update later this week.
JoeDecember 11, 2016 at 7:15 pm #93338
Joe…..I assume that chemo is not administered at this time? Has another treatment option been considered?
Hugs and love,
MarionDecember 11, 2016 at 7:09 pm #93340gavinModerator
You got it Joe, Thinking of you and your mum right now and sending loads of positive thoughts your way from over here.
My best to you and your mum,
GavinDecember 11, 2016 at 5:45 pm #93339debnorcalModerator
Sending love and healing thoughts to your mom.
DebbieDecember 11, 2016 at 4:21 pm #93341
It has been 3 weeks of chemo in my mother’s body and 1 week total by the end of today that she’s been in the hospital for low whit blood cell and platelets. Her numbers keep going up and then go back down, the momentum we had running into chemo seems to be running low and today were just told that she’ll need her second blood transfusion. I’m scared out of my mind and I can for the first time see that my tough mom is also scared. I keep hearing that this isn’t uncommon but we’ve now been in the hospital for a week and I’ve watched a half a dozen platelet bags put in her and massive amounts of antibiotics.
Please keep her in your thoughts and prayers.
JoeDecember 8, 2016 at 5:22 am #93342
Joe….your Mom is not receiving chemo at this time, correct? If not so, then there really is nothing else to do, but to await her platelets reaching normal levels again. Hang in there, this will pass.
Hugs to your Mom and your entire family,
MarionDecember 8, 2016 at 5:16 am #93344
I wish. I can hardly seem to get the attention of our doctor let alone another one for a second opinion on what is going on. Beyond frustrating, I’ve about lost it with our medical system.December 8, 2016 at 5:12 am #93343lainyParticipant
Joe, just a random thought but can another Doctor be called in to discuss what he may think is the best route with the chemo.December 8, 2016 at 4:45 am #93345
Well we’re now day 3 in the hospital still. Her platelets and white blood cells are having a difficult time being stabilized. Really feel blind sided here as the only real rebuttal from the doctor was…oh well I guess we need to lower the amount of chemo dosage as if he didn’t think thru it hard enough from the start. Very frustrated over here watching my mother in this uncomfortable situation while we can be spending better quality time together instead.
More updates to come….here’s to praying for the best tomorrow as they are on the 3rd bag of platletes and still her levels aren’t even close to normal.
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