Trying to keep hope
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Stephanie…I also would like to welcome you. On this board we have seen several members with CC/bile duct cancer following a previous bout with colon cancer. I am wondering about the connection. Wish someone could answer this for us. You have mentioned that the insurance company rejected a requested chemotherapy. Which one was that?
Hugs
MarionHi Stephanie,
Yes, this cancer has no shame and will pull the rug out from under you but I think now is not the time to throw in the towel, we have to fight fire with fire. Your mom is pretty young so I think she has that on her side, what is her current condition–mobility, appetite, energy level?
Patty
Hi Stephanie – We all understand how crazy and scary this thing can be. I’m only 29 and have no idea if I’ll live to see 40. I have been reading Patrick Quillin’s book “Beating Cancer with Nutrition” – some other members of the site have recommended it too. Whether it will help or not remains to be seen, but the book helps me to remain positive and optimistic and makes me feel like there is something I can do every day to try and help myself.
I’ve heard that Northwestern in Chicago is very strong in treating this disease.
Hi Stephanie,
Sorry you’ve had to join this club. You are wonderful for being there for your Mom. One thing that stands out in your post is the issue of her having pain. You need to address this with her doctor. There are things that can be done and she doesn’t need her strength being sapped by being in pain.
This is a wonderful site for information with some of the most helpful and compassionate people on the planet. You are in good company and I wish you the best.
We are all here for you and your family!
Hugs to you,
Pam
Wow. Thank you for writing back so fast. We are from South Bend, Indiana (Notre Dame). We have been told that we have a great oncologist. Dr. Ansari. My mom is at peace with his decisions. She had colon cancer at 30 and feels she got her second chance then and that maybe now it is someone elses turn. I know she is in a lot more pain than she is telling me. At this time she doesnt feel she needs to get a second opinion. They want her to take the pills for 2 months and then check to see if theres been any change. She said she will go from there. I need to get my mind right again so I can keep the hope that this will help.
Hi Stephanie. We are so very sorry you had to join our elite little club that no one wishes to join. My husband had a Whipple 3 years ago and the cancer returned last April where the duodenum used to be. We are lucky, he had radiation last summer and just finished cyber knife and he is cancer free again.
The only thing we know for sure about CC is that it affects everyone differently and that we really do not know much. With that in mind your feelings are perfectly normal. We always suggest getting another opinion. Read up as much as you can and especially in our search site there is valuable information. Its a lot for anyone to take in but all of a sudden when you feel informed and secure with the doctors your strength comes through and you become a real fighter against this disease. Do not know where you are located but please let us know as I am sure someone could be from your area and advise you of a place to turn to if you want a second opinion. Please keep us posted.Hi my name is Stephanie. My mother starting having problems in July with nausea and jaundice. She had a scan and they found a blockage. She had the whipple surgery. They said the tumor was cancerous, but her lymph nodes were fine. She then had chemo and radiation for what we thought was a precautionary thing. She got her scans back 2 months ago and they were fine. Great!!! My mom will be back to normal in no time. She recently started getting sick again, so they put her on enzymes and did another scan. She came to my house on Friday night to tell me she got bad news, the cancer was back. Spots on her liver, colon, and ducts. How can this happen so fast???? There was nothing 2 months ago. We went yesterday and her insurance company would not cover the chemo they wanted to do, so she is on Nexavar. We had no idea what this cancer was even called. When I came home and looked it up I was SHOCKED. When we asked how long she would have to be on this pill, he said hopefullly for the rest of your life. I came home feeling hope, now I dont know what to think. I’m scared, my mom is only 55.
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