November 8, 2010 at 8:11 pm #41139
Is tom still going in tomorrow to have stents removed? Please tell him best of luck from me!
p.s. how are you?November 2, 2010 at 12:21 pm #41138
I love the idea of your “new” 18 year old car. My daughter, who helps the economy greatly by buying new vehicles every few years commented about Tom and I not taking care of our vehicles very well. I said, Are you kidding? Every vehicle we own has almost 200,000 miles on it. We have to take care of them to keep them going that long. I can’t help it that they rust and the doors and windows quit working!! Ha! In fact our hold cargo van that I called “the tank”, that we used to haul plants to market etc., just died last summer with 227.000 miles on it. It was the best vehicle ever, never cost us a dime other than regular maintenance. That will probably never happen again.
Yes ,we are done for a few months. We’re going away for a few days this weekend ( renting a car) and then he’ll have his ERCP and I guess a colonoscopy at the same time next week.That caused some joking with the Doc yesterday I guess. Which comes first …oh I won’t go there!
I am really glad you are feeling better. It’s amazing how your body recovers if it just has time to heal. It usually takes Tom 2-3 weeks to get back to normal after a procedure, ecspecially if there is some infection. Best wishes for a successful “glueing”. You are the first person I’ve ever read about having that done. I really hope it works and you’ll have to let us know how they actually do it. It sounds very interesting.
Happy election day all. I am SO happy this will be over. We have worn out our remote muting political ads on TV. I quit answering the phone yesterday, we got so many calls.
Take care, MaryNovember 2, 2010 at 5:27 am #41137
Patty….glad to hear that you have bought a new car. I suppose that I will catch a ride when returning for ASCO. I am concerned though, do I have to do anything else but roll up the window. The doors close, right?
MarionNovember 2, 2010 at 5:23 am #41136
Mary……Congratulations on both; Tom’s great report and the truck returning safely with him. I am hoping for things to settle down a bit now. No crops for the winter; does that mean you can relax and take it easy?
MarionNovember 2, 2010 at 2:05 am #41135
So glad to hear about Tom’s MRI and good labs. Yeah! I’m glad the weather cooperated today and he had a safe trip. Once he gets his tubes out, he’ll be a new man!
Thanks for checking in – still leaking and still scheduled for a surgical procedure on Nov. 19th. My doctor is going to try and glue the leaking duct, that is if he can find it. This will be the longest I’ve gone between tube changes and I have to say I’m feeling so much better. I haven’t been as tired and my appetite is better. For the first time in 1-1/2 years I had some friends over and it was so nice! Kinda felt like my old self again. How’s everything with you?
BetsyNovember 2, 2010 at 12:52 am #41134tiapattyMember
Terrifico news! Just shows Tom is as good a runner as your old truck!
I always say, there is no car like an old RUNNING car. In July I bought a brand new 18 year old car. When I called the insurance, I think the lady thought I was crazy. It has manual windows and door locks and some of the door handles are broken but I think if I am giving someone a ride, they ought to do a little work.
PattyNovember 1, 2010 at 11:03 pm #41133devoncatParticipant
That is wonderful news Mary. I am so glad to hear it. I guess that truck has a little more life in it. Glad you got such wonderful news and tom got back safely.
KrisNovember 1, 2010 at 9:21 pm #41132
Tom is doing well. His MRI was good, the abcesses appear to be gone and bloodwork is good. We won’t know about the ca19 for a day or so. Next appointment in 6 months if all goes well with stent removal, etc. Thanks all, MaryNovember 1, 2010 at 7:51 pm #41131
Since Tom’s diagnosis I have lost 2 sister-in-laws to cancer, 53 and 60. We never imagined that Tom would still be the one around when he was first diagnosed. HE has a great attitude and is thankful for every day. Ecspecially when we’ve seen so many younger people fighting and some losing their battle every day. Both of us fuss about things sometimes, not enough money, we’re tired , too much work and not enough time( we have a 160 acre farm), on and on and then we stop and think about the fact that he’s still here and Glenda and Rosa are gone and how incredibly lucky we are. We’ve had and raised our kids, we have 3 grandchildren, my parents are still even alive and in their 80’s and doing well. Life is great and I am very grateful. I wish everybody was as lucky as we’ve been!! MaryNovember 1, 2010 at 6:33 pm #4113032coupeParticipant
I love your ‘attitude of gratitude’ expressed in your posting. I continue to pray that you and Tom will have many more years for which to express gratitude. And of course I’m praying now for Tom to get good news today…
Any change in your situation? I’m awaiting good news from you…
bobOctober 31, 2010 at 9:53 pm #41129
Good luck to Tom tomorrow. I hope he has good results from his MRI and blood work. It is hard to stay on top of regular follow-up appointments when you are busy putting out fires. I usually have to call my surgeon to find out when he needs to see me again.
BetsyOctober 31, 2010 at 9:47 pm #41128
Mary….safe travels to Tom. I am hoping for the old truck to hang in there. I agree in that keeping track of everything entailing healthcare for a loved one truly can be overwhelming. I have to do some research, but I know that there are some helpful tips and hints including, printable forms for this overwhelming task. I will post it again. Of course, you have accumulated so much knowledge, it might be better just to ask you.
I am crossing my fingers for good news coming your way. This includes the word “stable,” as it has taken on a new meaning on this site.
MarionOctober 31, 2010 at 7:43 pm #41127lainyParticipant
Mucho Good Luck to Tom. Just goes to show ya, us Caretakers get in to that mode of “nothing can happen without us” but ain’t it the truth??? You know, how you guys are takig your journey is what happened to us. 5 years of kind of gliding through and then all of a sudden things were not making sense to me and then I found out why. But them as we know each case is different. Hang in there Mary Tom will do fine and you are only a phone call away. So to speak.October 31, 2010 at 7:36 pm #41126
Tom is driving to Columbus( by himself) tomorrow for bloodwork and MRI. I guess this has been scheduled since his hospital stay in Sept but no one bothered to let us know until Fri. If I had known, we would not have gone to Pa but I was worried that they weren’t following up at OSU. This is the problem with big University hospitals. You have residents writing the discharge orders and they don’t always get things straight. I’ve always been pretty involved and called, e-mailed etc but have kind of backed off lately so I wasn’t being such a pest and now we are not getting communications straight. This shows that it is often necessary to be a pest in order to keep on top of things. Hopefully his bloodwork will have improved but I expect his ca19 to still be high. His liver is a mess right now along with swelling and inflammation in his duodenum. He even had stones that they had to sweep out of his ducts in Sept so I think we shouldn’t expect miracles. I honestly don’t even worry about it anymore. It’s just the way it’s going to be from now on. 4 1/2 years now of basically really good health with a few bumps here and there- we’ve been incredibly lucky regardless of the future. I just hope they don’t bum him out too much because they will probably tell him they think the cancer is back. Of course they have been saying that for over a year and still can’t see a thing.
Here’s hoping our old truck makes it to Columbus and back!! We’ve been car shopping but I can’t bring myself to make a car payment again! It’s been 10 years without one and it’s been great! Happy Sunday everyone!! MaryOctober 28, 2010 at 11:08 am #41125
Yes, we went to UPMC LIver Disease Center. When we went over before we went to the Liver Cancer Center and those guys ( surgeons) were all gung-ho about doing a transplant, ecspecially while Tom was still doing well. This guy ( the director of the center) said he would have to be on his death bed , in ICU, on a respirator etc before he could get one. I think the difference is cadaver and live donor livers. Anyway the guy was really strange, the director of the center telling us he didn’t handle cases like this, kept contradicting himself, just really strange. I wouldn’t want him for my Dr. I think we will stay put right where we are. The Docs are so much better to work with at OSU and we are comfortable there. I really didn’t have a problem with them it’s just these abcesses are a worry and we thought they would have more insight dealing with disease. But I guess thats not their thing-not really sure what is!?
Yes, Lainey it was a great day for a drive and even though I am a big Browns fan driving into Steeler country I have to say Pittsburgh is one of the prettiest cities I’ve ever been in. The entrance through the Fort-Pitt tunnel is always spectacular, ecspecially on a sunny day! Hope you had a great time last night with the kids. Give Teddy a birthday hug from me and Tom. Take care and enjoy you’re honeymoon. These are very precious times. I’m glad things are staying peaceful for Teddy and hope he remains painfree. Mary
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