Two types of CC?

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  • #94494
    positivity
    Participant

    Hello Fay,
    That is a personal choice to seek a naturopathic doctor. It doesn’t do harm to be knowledgeable about all your options, and don’t just resort to conventional medicine. Just like a healthy person has to maintain their health with quality food and supplementation, it should not be different for a person with a chronic condition or cancer.

    I cannot suggest what you should give her as each individual is different. I can only share what I give my mom. Before she was diagnosed her immunity was compromised due to a case of anemia, so the first form of healing was to increase her immunity before even considering conventional treatment.

    She has a mushroom extract twice a day, lemon water in the morning, 2 vitamin/mineral supplement for women over 50, one beta glucan, and tries to have a veggie or carrot juice once a day. She chews ginger a couple of times a day to avoid stomach aches. She eats fairly healthy, but can get off track at times so it’s hard to be very strict. I had no alternative, but to set a program to build her body. This is in addition to emotional healing and walking a few days a week. This was tough to implement, but this was our only choice. She could not and would not get chemotherapy.

    Again, please use your judgment, I am only sharing. Look at her blood tests.

    Thanks for sharing as we continue our journey.

    #94495
    lainy
    Member

    I hear you! Fay, I just looked at some past posts and I believe the hospital that has a lot of experience in Seattle is the Swedish Cancer Institute. (Dr. Philip Gold with Swedish Cancer Institute in Seattle). Family, please correct me if I am wrong. Don’t be shy.

    #94491
    Fay
    Participant

    Thank you Lainey,

    You are an angel and Teddy was lucky to have you care for him so lovingly.

    I heard on the news today that a family donated $35 million to Fred Hutch in Seattle for cancer research. That made me happy and I pray a nice portion of that goes towards funding research for CC treatment.

    Fay
    Xo

    #94490
    lainy
    Member

    Fay, you can do what ever she is comfortable with however, ALWAYS make sure her ONC knows what you are giving her that is different than what she has. The jury is still out on supplements.
    Hospice told me to give Teddy (a few years ago) Carnation Instant Breakfast and it can take the place of a meal or you can drink it with the meal. It has all the nutrients in it and he really loved the Vanilla with a banana blended in.

    #94493
    Fay
    Participant

    Thank you so much. May I ask what supplements? Should we also consult with a naturopathic doctor? In addition to her medical oncologist of course.

    Fay
    Xo

    #94492
    positivity
    Participant

    Fay,
    Also, make sure she gets high qualities nutrition, a lot of plant based foods. Vegetable juices daily and supplements. Sorry, I got short on time to elaborate.

    #94489
    Fay
    Participant

    Hi crfisher…am very new to this site but my mom has papillary mucinous cc and it is a slow growing tumor. And yes from what I know, they are more rare, have better prognosis (if caught early), but are less responsive to chemo b/c chemo is designed to kill more rapidly growing tumor cells (which is why chemo also affects hair, blood counts, gastrointestinal track, etc.).

    We requested for microsatellite instability testing of the tumor, as well as molecular profiling. Still waiting for the results. This has been our experience so far. I am not an expert by any means and am stlll learning.

    #94498
    positivity
    Participant

    I have also been very curious about this, and on my continuous journey have learned the uniqueness of each individual. There may be differences on how active the cells are from individual to individual. Has anyone had a PET scan to determine this? Isn’t it supposed to show the activity and aggressiveness of the cells? I know sometimes the areas lit up can be inflammation and not necessarily having to do with the activity of cancer cells.

    #94497
    bglass
    Moderator

    Dear crfisher,

    This is an interesting question. From what I have read, there are various factors that predict a less aggressive cancer. The term for this seems to be “indolent.”

    For example, some CCA mutations seem to be associated with a less aggressive cancer, e.g., FGFR.

    Another factor associated with aggressiveness is tumor grade. Well- or moderately-differentiated tumors are viewed as likely less aggressive than poorly differentiated ones.

    I have seen the same conjecture discussed, that more aggressive cancers may be more responsive to chemotherapy because chemo attacks fast-growing cells, I don’t know, however, if there is evidence on this point one way or the other for CCA.

    My own impression is that every CCA patient is unique because the cancer has a lot of diverse factors giving each of us our own “mix.” Like most everyone else, the specifics of my own case are a grab bag of positive and not so positive features, so I cross my fingers and pray for good outcomes. The trend toward personalized medicine is very favorable for us.

    Regards, Mary

    #94496
    debnorcal
    Moderator

    Once, when assessing prognosis, my husband’s Doctor commented that with CC, there is “good tumor biology” and there is “bad tumor biology”, and the good reproduces more slowly. We didn’t ask for more details at the time. I’m sure he was simplifying for us, and to me it sounds like he was referring to something similar. It may make sense to dig a little deeper on this issue.

    #94499
    marions
    Moderator

    crfisher….interesting question I am not able to answer. I do know that some people have slow growing CCA while other patients progress rapidly. I have not heard of non-response to therapy for the reasons mentioned by you.
    Anyone out there with an answer for us?

    Hugs
    Marion

    #13154
    crfisher
    Member

    Are there two types of CC, one is aggressive and the other is very slow growing which makes the CC unresponsive to therapy because the cell multiplication is so slow. Has anyone else had this same type?

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