Discussion Board Forums General Discussion Unrestctable cholangiocarcinoma tumors can be easily destroyed with Y-

Viewing 15 posts - 1 through 15 (of 22 total)
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  • #23827
    tiapatty
    Member

    Here is a hopeful story about Y90 microspheres:

    http://www.nmh.org/nmh/mediarelations/mediaoutputs.htm?cid=3115

    Patty

    #23826
    marions
    Moderator

    Ron…..thanks so much for posting this.

    #23825
    ron-smith
    Member

    For anyone who may not be aware, in the articles in http://www.y90support.org/yes/Stories.html
    “Jerry’s Story” is about Jerry Daniels, whose recent death was announced in “In Remembrance”

    Ron

    #23824
    jean
    Member

    Suzanne

    I found the article on Pub Med…just google Pub Med and then type in the title on the Pub Med site. It’s the abstract only but hopefully will have what you need. Hope that helps!

    Jean

    #23823
    suzannegm
    Member

    Thanks for the e-mails but I still had no luck. I’ll have to get my husband to solve this one for me.

    Does the article show the quote that Wayne has on his original post?

    #23822
    tiapatty
    Member

    I sent Suzanne the link.

    Patty

    #23821
    suzannegm
    Member

    I adjusted my cookies setting but still no luck. I have a Mac. I wonder if that has anything to do with it. Can someone send me the link to my e-mail address, suzannegm@windstream.net

    Thanks!

    #23820
    darla
    Participant

    Suzanne,

    When I tried to link to it I got a message stating I had to reset my browser to accept cookies. Maybe that is the problem you are having also.

    Darla

    #23819
    marions
    Moderator

    Suzanne…it opened up for me when clicking on it.
    Marion

    #23818
    suzannegm
    Member

    Has anyone been able to like to the website that Wayne gave in his first post on this? I can’t link to it, and I would like to print it out. Thanks.

    #23817
    walk
    Member

    I found this website about Y90/sirspheres.

    Chuck’s story on there tells about how they strong armed an insurance company into paying. Might be worth contacting them to get more info.

    Good luck

    http://www.y90support.org/yes/Stories.html

    #23816
    carol58
    Participant

    Thanks Bill for the good information. We’re not giving up.

    Hi Jan, your parents are so close to our house. We probably go right by their house or close to it on the way to church. I did get your contact info. and I’ll be in touch soon. Thanks.

    Carol

    #23815
    walk
    Member

    Carol,

    So far that is all that I know about insurance. Mary England has been most helpful so far.

    I would love to meet you both. You are practically neighbors of my parents; they are close by the intersection of Shattalon and Yadkinville RD.

    I will use the email link to give you my contact info. I will be up there next Monday and Tuesday of next week if you guys are free and up for it. If not then, I am sure I will be there regularly.

    #23814
    bill
    Participant

    Carol,

    Do not take no for an answer! Keep fighting for coverage because there are others out there paying for this.

    * Listen to this radio program:

    http://www.patientpower.info/listenhealthtopicdetails.asp?showid=HR062707&Topic=Health%20Insurance

    * Check out CIGNA’s coverage position for this treatment:
    http://www.cigna.com/customer_care/healthcare_professional/coverage_positions/medical/mm_0081_coveragepositioncriteri a_selective_internal_radiation_therapy.pdf

    My wife had coverage for this with a Minnesota health plan called Medica. I don’t know if they did an exhaustive study of whether to cover Therasphere but they did cover it. She had two treatments at Mayo Clinic and they were the best things that she did to address the liver tumors. Unfortunately, it doesn’t help when the cancer spreads beyond the liver.

    Good luck.

    Bill

    #23813
    carol58
    Participant

    Wow, your parents are close by. I can get to the Reynolda area in about 5 minutes. We’re between Shattalon Dr. and Bethabara Park Blvd. Lunch would be great. Charlie and I would be glad to meet you.

    Charlie isn’t eligible for Medicare until 24 months from his diagnosis, which will be May 2009. He’s on disability after a 6 month waiting period for it. The Blue Cross of Illinois insurance he has now does not approve SIRspheres, but we’re in the appeals process. It’s not looking too good, but we still have hope, always hope. We did qualify for Medicaid for 3 months, but that was all and it was because we had so much medical that could make up their deductible. So as far as I know, Medicare/Medicaid won’t help us right now. His ex-employer is still paying for his BC until the end of this year. After that, we’re on our own. Will be paying $750 a month for his and my Cobra coverage. Right now, we’re only paying $325 for me. Have to do that for 6 months until Medicare is available. Unless anyone else has other ideas??

    Carol

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