Update

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  • October 24, 2015 at 5:09 pm #90089
    marions
    Moderator

    Kernos…..the sensitivity in your feet may very well be related to chemo-induced peripheral
    neuropathy (CIPN), so be sure to tell them about any changes you notice.

    This link will help you understand Peripheral Neuropathy Caused by Chemotherapy.
    http://www.cancer.org/acs/groups/cid/documents/webcontent/002908-pdf.pdf

    What chemo agents have you been switched to? Also wondering whether genetic testing had been advocated by your physicians?
    All my best wishes,
    Hugs,
    Marion

    October 24, 2015 at 3:22 pm #90088
    lainy
    Spectator

    Tony, the very best news is that your “team” is right on this situation! This has happened to others and the change of chemo worked beautifully. Wishing you the very best of luck and sometimes this finding the right chemo is like a game of hunt and peck but your team WILL find it! Thank you for the update.

    October 24, 2015 at 9:17 am #90093
    kernos
    Member

    Well the good news and bad still stands.

    The oncologists aren’t sure how one can grow whilst another shrinks so they have decided to give me another 2 cycles of chemo and then redo the CT scans.

    They have changed my chemo thinking I might have developed a resistant to it plus I’ve got a bit of sensitivity issue in my feet.

    When I went in for chemo the next day my tumor Markers test was back, it has intense from 1100 in early September to 2540 now, that back to mid July numbers. That has just given them further belief my chemo stopped working.

    Thanks for listening it’s good to have a place to vent ☺

    Tony

    October 21, 2015 at 9:08 pm #90087
    kernos
    Member

    Thanks for the well wishes all.

    Guess we are slightly confused how one can grow whilst another shrinks. Answers today I hope?

    Geneveive yeah I got my local hospital for treatment but it’s part of the cancer unit run out of Westmead Hospital. I have a multidisciplinary team though I’m not sure how much they are involved once the treatment plan was decided upon.

    Tony

    October 21, 2015 at 7:46 am #90086
    genevieve
    Spectator

    Hi Tony,

    I’m also from Australia and my husband had one of his resections in Sydney; we saw an oncologist there as well three years ago. Are you at a big hospital and do you have a multidisciplinary team reviewing your case?

    Good luck tomorrow with the oncologist.

    Best wishes,
    Geneveive

    October 20, 2015 at 9:14 pm #90085
    gavin
    Moderator

    Hi Kernos,

    The stable and shrinkage are good and I would certainly focus on that right now. It could well be the case as Catherine says that the 15mm one was missed first time around and that it is not actually new. Hopefully you will find out more about that when you meet the onc and also what they are planning to do about this treatment wise. Please let us know how everything goes and know that we are here for you.

    My best wishes to you,

    Gavin

    October 20, 2015 at 1:08 pm #90084
    lainy
    Spectator

    Dear Kernos, we love the words shrinkage and stable so all in all not a bad report and like MidSis said that one spot could have been there and was missed. Keep up the good work and thanks for the update!

    October 20, 2015 at 9:05 am #90083
    middlesister1
    Moderator

    Dear Kernos-

    Shrinking tumors is always a good thing. I wonder if the 15mm was so small that they missed it the first time around and maybe not something new.

    Good luck Thursday- let us all know how it goes.

    Catherine

    October 20, 2015 at 6:45 am #11793
    kernos
    Member

    Well just got my first CT scan results

    My original metastic deposit has shrunk from 64mm to 49mm so that’s good.
    My other original deposit has stayed the same so that’s probably good.
    They have found another metastic deposit that’s 15 mm in size. Guess thats bad, I see my oncologist on Thursday.

    All that’s in my abdomen, no sign of any roblems anywhere else. Yeah

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