Update
- This topic has 6 replies, 5 voices, and was last updated 8 years, 2 months ago by
.
-
Posts
-
Thanks both .
Lainy – he had the colectomy a few weeks ago as an emergency op when they discovered the bowel cancer.
I thought this weak was relatively calm but on Tuesday the biliary stent that they put in in October moved and popped out the other end which was something we really weren’t expecting. The bilirubin levels are OK at the moment so no need to do anything as an emergency and we now have an appointment on Tues to find out what the plan is with the bowel oncologist.
We are doing OK all things considered but could do with a breather now!!Kay
Dear Kay,
I agree with Lainy that it’s amazing how strong we can be when we have to. However, also take care of yourself and know that it’s ok to take a bit of time for yourself to “not be strong” too when needed. I think all patients and caregivers should realize we sometimes need a little pity party (crying and yelling are fine) to recharge so we can continue to be strong.
Take care,
CatherineDear Kay, Oh my gosh! What a whopping diagnosis! At least it sounds like you are in good hands and that the 2 Doctors are working it out together. IF they come up with a Colectomy I just wanted to let you know I had one a year ago and would be happy to talk to you about it. I did not have Cancer but an ulcerated Colon that would not heal. I can now live life again and so glad I did it. I sure hope they get everything worked out and try to stay very strong. You never know how strong you are until “strong” is the only choice you have! Please do keep us updated as we truly care.
Thought I would just give an update on the week’s events. So this week we met the colorectal surgeon and then the Upper GI oncologist who has been treating my husband since the beginning of Nov when he was diagnosed with cholangiocarcinoma. They have compared the biopsies from the bile duct and 2 areas of the bowel from the hepatic flexure and the sigmoid colon. They think that given the exceptional response of the tumour in the bile duct to the GemCis chemo and the growth of the cancer in the colon at the same time, that we are dealing with two primary advanced cancers. The oncologist says that the bile duct cancer has now been overtaken for the moment by the bowel cancer in terms of priority and so we are now waiting for an appointment with a colorectal oncologist to see what the outlook and treatment plan is from here on in…When the cholangiocarcinoma rears its head again the two oncologists will put their heads together and advise. It’s been an incredible few weeks for all the wrong reasons and of course now we’re back to square one wondering whether the outlook will be weeks, months or more.
Kay
Hi Kay,
Wish that I could help you on this but like Marion I am not sure about this either. I too will be keeping my fingers crossed that the histology reports will show the next course of action so that treatment of whatever type can begin and begin soon. Please let us know how things go.
My best to you and your husband,
Gavin
Kay…..Within the 100 thousand plus postings on this board, not once do we have a report on the ultra rare occurrence of metastatic CCA to the colon. As far as I know, there are few case reports on this matter. I hope for someone out there to help you out and share his/her experience with us.
Crossing my fingers for the histology report to help guide the physicians to the next step of treatment.
Hugs,
MarionWell our celebrations after a great response to the first 5 cycles of chemo were a bit short lived. A month ago my husband started getting stomach cramps then vomiting. To cut a long story short a weekend in A and E confirmed that there was an obstruction in his colon at the hepatic flexure that needed to be relieved with emergency surgery. There was also a suspicious area of thickening at the opposite end of the colon and the surgeons intention was to take the whole lot out in one go if possible but the anaesthetist stopped the op before he could get to the other area. So my husband ended up with he a right hemi-colectomy and after recovering for the past month we are now waiting for appointments post histology results (next week) to tell us what they think. The surgeon who did the op said he could see spots on the peritoneum which I guess is not good news, but he said the treatment options will now depend on the histology reports.
We don’t know what to think now – my understanding is that cholangiocarcinoma spreading to the colon is very rare – is that correct? If the cancer in the colon is emanating from a primary cholangiocarcinoma is it par for the course for it to have got much worse when the bile duct tumour and lymph nodes showed real improvement following the chemo regime?
Anyone got any thoughts?
- The forum ‘General Discussion’ is closed to new topics and replies.