November 3, 2011 at 1:26 pm #53419lainyParticipant
Dear Tom and Ben, I will be praying and hoping for Ben today as he gets rerouted! Please let us know how the surgery went and thankfully it is the only place they see and can be taken care of. Tell Ben I said he strives for too much attention! Hugs to you both.November 3, 2011 at 12:40 pm #53418pamelaParticipant
Best wishes to you and Ben. I will pray for him as he continues his battle.
-PamNovember 3, 2011 at 11:03 am #53417tlsinftlMember
Thanks everyone for your support! With the barium X-ray and the cat scan the doctors determined that the cancer has grown and is blocking the flow from Bens stomach to his duodenum. Just like other cases, I guess you never know where it is lurking.
After consultation with our oncologist, GI doctor and the surgeon, decided that Ben will have surgery today (Thursday) to reroute his small intestine to bypass the blockage. The GI doctor said its a similar procedure they do for gastric ulcers, and only a one and a half hour laparoscopic surgery with a 5-6 day hospital recovery. Ben is healthy in all other aspects so hopefully the surgery will go well. They said they would start him back in chemo in about a month once he fully recovers. At least they don’t see any major growth areas, this one just got in the way of the stomach. Apparently the surgery is called, gastrojejunostomy. My vocabulary is certainly being stretched with this nasty cancer!
I have a call into the mayo clinic too see if they would render a second opinion based on the local findings but havenet heard back. My guess is they likely won’t render an opinion without seeing him, or at least not seeing the most recent scans, X-rays, etc. However, our local doctors seem confident and based on my own research on this board, these little battles and “rerouting” procedures are part of of the ongoing war.
On to surgery! Take care everyone,
TomOctober 31, 2011 at 10:26 pm #53416darlaParticipant
I too will be hoping for the best for Ben and also for you. Let’s see if we can’t get you guys back in the good news section of the board.
Thinking of you both.
Love & Hugs,
DarlaOctober 31, 2011 at 9:09 pm #53415mustangmortParticipant
Tom, haven’t been introduced before now, but all my love and support to you and Ben.October 31, 2011 at 11:55 am #53414gavinModerator
I am sorry to hear Bens latest news, I much prefer reading your posts in the other section. Sorry also that you had to cut short your trip to Europe, but you did the right thing in getting home and getting Ben seen by his GI doctor. Fingers and toes are crossed here for Bens X-ray today and I am sending you both a ton of positive thoughts. You know that we are all here for you both and please let us know how everything goes.
My best wishes to you and Ben,
GavinOctober 31, 2011 at 3:56 am #53413pamelaParticipant
I am very sorry to hear of your bad news. I will be thinking of you and Ben and praying for the next time you post that Ben is feeling better.
-PamOctober 31, 2011 at 2:48 am #53412cherbourgParticipant
So sorry to hear this news. This is one of those times when you follow the 5 minute rule…..do 5 minutes, breathe, then do the next 5 minutes!
I’m sending hugs and prayers your way. I remind you to also remember to take care of the caregiver…(that would be you!)
Please know we are always here for the both of you!
PamOctober 30, 2011 at 11:12 pm #53411marionsModerator
Tom….so sorry to hear that you had to cut short your long awaited vacation. You are taking the right position by awaiting the test results. Based on those findings the physicians will have a clear understanding on what is going on and will then recommend the next steps to be taken. Hang in there, Tom and Ben. A tidal wave of support is heading your way.
All my best wishes,
MarionOctober 30, 2011 at 9:29 pm #53410lainyParticipant
Dear Tom, I too do not like your news this time! I rather hear about your ventures around the world! I am crossing everything I own that your news will not be bad and that a simple problem has occured and will be taken care of post haste. I would say its more like a trick than a treat. Hoping for good news!!!October 30, 2011 at 9:08 pm #5757tlsinftlMember
It’s been a while since I’ve posted – and luckily my last few posts have been in the “good news” section, but unfortunately this post isn’t there.
Just for some background, my partner of 16 years – Ben was diagnosed with Stage IV Intrahepatic CC with mets to the omentum and surrounding lymph nodes in August 2010. He made it through the Gem/CIS chemo quite well and finished up all 8 rounds in April. He had about a 50-60% reduction in his primary tumor and has been feeling quite well all summer. His last scan was at the end of August and showed everything was still “stable” with no new activity detected.
In mid-October he began having a feeling of heartburn (which he has had for several years). He had been off his ant-acids – Prilosec for quite some time and both his Oncologist and GI doctor thought it might be that and ordered him back on Prilosec.
That seemed to improve his condition, and we headed out on a two week vacation to Europe to see friends on October 20th. Unfortunately, once we landed he found that anything he ate made him feel extremely full (even though he was barely eating) and he started self-inducing vomiting to help improve how he felt.
We called our GI doctor and he told him to go on fluids only and head back home (which we did). On October 28th he went in for an outpatient endoscopy to see what might be lurking, but unfortunately his stomach was so full of fluid they had to abort the procedure and drain his stomach.
The next day they did the procedure again and they couldn’t find any blockages internal from the esophogus through the stomach but they have noted that the end of the stomach is mis-shapen so something could be pressing on it – or it could be a problem further down in his intestines. They also ordered a CAT scan but the results were inconclusive (partly because he was starting to vomit during the procedure from the IV contrast and it was a bit shaky), but they said they saw enough to lead to the next step.
Tomorrow they are doing an Upper GI where they will fill him with Barium and watch through an x-ray so they can determine where they blockage is. Not really a Happy Halloween!!
So, here I sit in the hospital room, once again researching here on the boards (I know I’ve been away, but sometimes it became too painful to read too much here, so I just tried to post major events). As always, the board provides good research information and background to allow me to ask the doctors better questions, and in some cases give them examples from real patients since so few doctors have experience in this cancer.
I will say – it is a little depressing, from what I am reading these blockages are somewhat “common” and usually from tumors lurking and growing here and there, but I will wait until the doctors assessment – and meanwhile I will hope for the best!
While I’m not thrilled to be here researching again, I’m incredibly thankful for this board, my friends here and the invaluable information it provides when you need it.
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