July 16, 2014 at 5:47 am #79268marionsModerator
Kris….so thrilled for you. Know that we miss you, but are happy that things have worked out. Have fun and enjoy your time with your family.
MarionJuly 16, 2014 at 5:40 am #79267
Yay!!! Brilliant news Kris! Enjoy your trip back home to see your family, have a great time!July 16, 2014 at 5:01 am #79266
The break is a go! 15 days without these drugs! I’m hoping I lose 15 lbs!! lol
Realistically, I’ll take 10 lbs. and the flight is booked for next week. One week from today and I’ll be in Alabama hanging with my bros and their families!! I can’t wait!July 11, 2014 at 10:19 pm #79265iowagirlMember
Kris….if fingers crossed, prayers said, only good thoughts make a difference….you’re on your way to Alabama. You deserve the break…and “whatever normal is.”
Iowa GirlJuly 11, 2014 at 5:18 am #79264lisacraineParticipant
Great news Kris! You deserve a break and a fabulous trip! Can’t wait to see photos.
LisaJuly 11, 2014 at 5:05 am #79263
Great news Kris, thanks for that! Keeping my fingers crossed for the scan and the results and so hoping that you can get your few weeks off to go see your family in Alabama.July 10, 2014 at 6:24 pm #79262marionsModerator
Kris…..Fingers crossed for the absolute best test results coming your way and off you go to see your family and get a break from it all. Suppose that is what we call “normal”.
MarionJuly 10, 2014 at 5:31 pm #79261lainyParticipant
Sounds good to me, Kris. I just have a feeling everything is going to be good and so I will say ENJOY your trip, you deserve it. Safe travels.July 10, 2014 at 5:17 pm #79260
Newest update… Things have continued to be stable. The edema is pretty much under control with Lasix.
I spoke with Dr. Denlinger. My next scan is Monday and I get results Tuesday. As long as the scan is good, Dr. D is going to request a couple of weeks off for me, while I travel to Alabama to see family. I’m hoping they say yes, and the edema lessens on it’s own. As well as the fatigue. Maybe I can get back to “normal”, whatever that is!June 20, 2014 at 6:56 pm #79259
I’m 14 months into this trial… The hair thinned but seems to be holding steady. The fatigue is getting worse, but I can handle that. The edema is getting worse, too. But Lasix 2x a day is keeping it mostly at bay.
I discussed my concerns with Dr. Denlinger. I am flying to Alabama at the end of July to see Mom & Dad, and all my brothers and families. We are busy coordinating this now. My concern is the flying with the edema.
Dr. Ds response was a surprise. Since I am past 14 cycles, I have more than met the criteria for the trial. I am now “maintenance”. Still being followed, but the requirements were met. So, provided the CT scan in July looks good, Dr. D is going to suggest to Lilly that I get a 2-3 week break. Hopefully it will give my body a little time to bounce back a little bit from the cumulative effects. Hopefully they allow it!May 24, 2014 at 5:50 pm #79258
Real sorry to hear this latest news about Lynn. Like Kris and Darla I will keep my fingers crossed for Lynn that the Folfox starts working fast and works well too. Please do not give up hope, and as you say think back to a year ago when you weren’t even sure if Lynn would get to start that first round of the chemo. You know that we are all here rooting for Lynn and everyone is here for you too. Please let us know how things go.
Thinking of you both right now.
GavinMay 24, 2014 at 12:10 am #79257darlaParticipant
Carl, I too am so sorry to hear of this down hill slide in Lynn’s treatment. Hoping that the chemo will turn this around and that the pain can be kept under control. Hoping for the best results. Let us know how things are going when you can.
Love & Hugs To You Both,
DarlaMay 23, 2014 at 9:43 pm #79256
Oh, Carl. I am so sorry. I wish there was something I could do.
Did you ever have the genomic sequencing done? It seems to have targeted specific treatment options for me…
I sure hope the Folfox helps Lynn. Kick some butt! Please keep me posted.May 23, 2014 at 9:03 pm #79255scheitrumcParticipant
Not good. The cancer has grown in and outside the liver. The lymph nodes, which had been contained by Gem/Cis such that they weren’t even showing, are now bigger than before. Lynn has pain in her shoulder and abdomen all the time. She is back on Oxy for pain. She is bloated from the liver growth. Feels terrible all the time. No appetite.
Man how things have gone downhill in a hurry.
As of today we are officially off the trial and will begin a new chemo regimen (Folfox) beginning next week. Hoping for another successful period of chemo so we can get back to where we were before the trial.
Options are starting to diminish unless we can contain this growth. From day one, however, Lynn’s cancer has been very, very aggressive and grows at incredible rates without chemo.
Having expressed the reality of the situation, I can still look back at almost exactly a year ago when Lynn’s condition was so difficult we weren’t even sure they would administer the first round of chemo.So from that perspective we are in a better position this May than we were last May.
CarlMay 21, 2014 at 7:28 pm #79254
Carl, how is Lynn doing?
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