Update on my mom
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Hi Anne, Sending positive thoughts to get your mom’s bilirubin down. Sounds like you have a good team there and are doing your best. Take care. Nancy
Anne….your Mom has raised a wonderful daughter – a reflection of a great Mom. I am glad to hear that you have a great support system put in place and that your Mom is being made comfortable. I agree, Anne, we don’t give up the fight and don’t let go of hope.
Hugs,
MarionThanks Lainy and Marion.
Making mom comfortable is the number 1 priority now, we want to give this disease one last fight if for some miracle her bili comes down. Although I’m not naively optimistic.
We have a visiting nurse setup with mom, who comes in about twice a week to see how mom is doing and we are in constant contact with mom’s oncologist.
My aunt comes and stays with us a few days a week, this has been a tremendous help for mom and I both physically and mentally.
Anne…I am sorry to hear the latest news. Anne, who else is involved in your Mom’s care? Do you have relatives nearby? Who is her family care practitioner? You might want to consider having an honest talk with a physician familiar with your Mom’s illness and someone whom you trust to speak with openly. Please, stay with us on this board. We care.
I am sending a tidal wave of hugs your way,
MarionDear Anne, so sorry for what Mom is going through, comfort is major so hope that Bile keeps draining. Sometimes the Jaundice seems to ake forever to leave as it seems to ‘stain’ the skin for a few months. I used to tell Teddy, I didn’t like him in yellow, it was not his color! TRY TO TAKE EACH DAY AT A TIME AND BE STRONG!
We went to see mom’s oncologist last Friday and the blood test results for bilirubin was still rising even though there are about 250ml – 300ml of drainage daily.
We went to see IR again this Tuesday to see anything else can be done, they were able to put in a metal stent in addition to the external drain. IR doctor is not sure how much the metal stent may help. Mom is still very jaundiced and her energy level is very low. Her oncologist worries that the bilirubin may never come down to under 4 where she may try more treatments. This is my worry as well.
I called the oncologist office to get an appointment scheduled in the next couple of weeks to check her bilirubin level again.
I believe mom’s cancer is very aggressive, as her CA 19 9 is now at 106056, doubled in a month.
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