Update on NIH Trial

Discussion Board Forums Clinical Trials Update on NIH Trial

Viewing 15 posts - 46 through 60 (of 93 total)
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  • #78760
    mattreidy
    Participant

    F A N T A S T I C !!!

    Congratulations Melinda ! :) :) :)

    #78759
    judym
    Member

    Melinda, so very happy for you and for all that you share with us. You do inspire us. Hugs to you, Judy M

    #78758
    middlesister1
    Moderator

    Melinda,

    We are all so happy for you and your family! Your compassion for all the others fighting this disease speaks so much to the person you are. I appreciate how much you do to give visibility to CC and hope to so many.

    Love and hugs,
    Catherine

    #78757
    gavin
    Moderator

    Brilliant news for you Melinda, love it! Doing my Highland Fling YAY dance for you here tonight!!

    So hoping that this treatment and trial can and will be rolled as quickly as possible to the so many other people that you talk about as well. Fingers crossed.

    Hugs,

    Gavin

    #78756
    lainy
    Participant

    Melinda, this is fabulous news! Can’t say I ever get tired of doing cart wheels and yelling YIPPEE! Look forward to more good news!

    #78755
    iowagirl
    Member

    Melinda,….Wow….good news continues. Just AWESOME!!! ….and I love the word, “disappear”. Let’s all say a prayer that this becomes available to more patients in the near future. Meanwhile……thank you for being our voice and example.

    Julie T.

    #78754
    mbachini
    Moderator

    Dear All,

    I am very happy to report that I have just returned from my checkup at NIH. I am 16 months post treatment and have great results. The tumors continue to be stable, slight shrinkage in a few and they said one tumor in my lung seems to have completely disappeared!

    This trial has been opened up to many solid cancers now, which is wonderful, but it also means that accrual has slowed down, because the demand is high. The wait time is longer from time of acceptance to actual cell infusion, which for many of us is not a good thing since time is always of the essence. They are continuing to learn more and more about immunotherapy and we need to keep our eyes open for some new trials on the horizon in about 6 months. I have such hope in the future of immunotherapy and wish it would only come sooner!!

    While I am forever grateful for the amazing results I have been given, it is also bittersweet…. I have met and come to know so many wonderful people who I want so desperately to be able to share in this success. I pray everyday for everyone who fights this disease, for the researchers to find the cure and the strength and peace to overcome the difficulties. I love to hear other stories of success and hope, and I love to share them with others. I only want to inspire others to never lose hope. Three years ago, I would have never imagined being here…..five years ago when I was diagnosed, I had NO idea what I was in for…..things change, opportunities arise and miracles happen every single day!

    I consider every single one of you part of my family, and I feel very privileged to be a part of this amazing family!!

    Love and hugs,
    Melinda Bachini

    #78753
    iowagirl
    Member

    Melinda,….I will openly and unashamedly admit that when I read your Oct 2014 post, tears ran down my cheeks. I am soooooo happy for you to receive the news of slow shrinkage and stable. I have to also admit that I’d be right there with your husband, grilling them for more info…more answers. That’s just the way some of us are wired, I guess.

    Awesome news……so good to hear those positive checkups.

    Julie T.

    #78752
    mbachini
    Moderator

    Thanks Lainy! I love your YIPEEs!! By the way, I will be in your neck of the woods November 6-10th! Hoping for some of your warm weather while we are there!

    Thank you Matt, Darla, Gavin and Judy….I do so appreciate all your support! Slow and Steady does win the race!!

    Dear WMIL from Holland …I am so glad you could view the webinar. I hope that they are able to perfect this treatment and then have it available world wide!! I will definitely keep my eyes and ears open for any future news. I also welcome you to this site and would love to hear more of your story as well! Thank you so much for your support and please know that we are all here to support you as well! I will keep you in my thoughts and prayers!

    Love and hugs to you all,
    Melinda

    #78751
    judym
    Member

    Melinda, So glad to hear that your tumors are stable and shrinking! I joined the webinar last week and found it very informative– your personal experience added so much to Dr. Tran’s excellent overview. Thanks for sharing your ongoing story. Best to you,

    #78750
    gavin
    Moderator

    HI wmil,

    Welcome to the site. Sorry that you had to find us here but glad that you have joined in as you are so in the best place for support and help and you will get loads of each from all of us. Please feel free to tell us more if you want about what is happening with you, we are all here for you. But if you don’t want to share more with us then that is fine as well!

    You are so right that stories like Melinda’s do give everyone hope and I so hope that they will start a trial like this in Europe. I am from Scotland by the way, just a hop over the North Sea from you. Like your name as well! I so hope that you will find a treatment that works for you, what are/have you had treatment wise?

    If we can help then please just ask and we will do our best. And if you want to introduce your self then please feel free to do so on the Introductions part of the site and I know that you will get many more responses over there. Keep coming back and I look forward to hearing from you more. Moontje is from Holland too and I am sure that she will reply to you as well.

    My best wishes to you,

    Gavin

    #78749
    gavin
    Moderator

    Hi Melinda,

    What brilliant news, thanks for sharing that!!! Remember what they say about slow and steady, slow and steady wins the race!! So yep, I like that! And telling your research scientist to hurry up, I like that too!!

    Looking forward to hearing more about your shrinkage and loads of positive thoughts are heading your way.

    Hugs,

    Gavin

    #78748
    darla
    Participant

    HI Melinda,

    Slow and steady is good news. Glad to hear it and thanks for sharing your good news with everyone here.

    Hugs,
    Darla

    #78747
    wmil
    Participant

    Dear Melinda,

    I have watched the webinar last week in which your doctors and yourself explained in detail what the Tcell trial is all about. What a wonderful breakthrough and hopeful results! Thank you very much for sharing.

    Unfortunately the trial is not (yet) available in Europe (the Netherlands). But case studies like this do give hope and inspiration. My situation is similar to yours and I am desperately seeking for new options. I will definitely discuss this (future) option here overseas.

    I wish you all the best!

    With love,
    from Holland

    #78746
    mattreidy
    Participant

    Fantastic! xxoo

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