Update on our son, Jeff
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Dear Bob and Nancy,
I am so sorry to hear that Jeff’s last scan was not a good one. We can only hope that his next one will be better. He is such a trooper with still wanting to work. He is so lucky to have such kind, loving parents and you are lucky to have such a brave son. My prayers are with all of you. Take care and God bless.
Love,
-PamDear Bob and Nancy,
I am truly sorry to hear this latest report, but am grateful to you for sharing it with us. Having now met Jeff personally, I can attest to his positive spirit. He is a remarkable young man, and you obviously are wonderful parents. We continue to lift you up in our prayers.
Mark and Jeannemarie
Dear Bob and Nancy,
The 3 of you are incredible. I am willing the news to be better for Jeff and will keep you all in my thoughts.
X
Dear Bob and Nancy,
Thanks for letting us know what is happening with Jeff, and I am real sorry to hear how things are going for him right now. For sure I will be keeping you all in my thoughts and I so wish for much better news from Jeff’s next PET/CT. Ton sand tons of positive thoughts are coming Jeff’s way.
Thinking of you all,
Gavin
Bob and Nancy,
Love, strength and prayers to you both and to Jeff. He really is amazing… Clearly your and his employers support are too. I am grateful to hear he is not on much discomfort. Let us know if you find the lambs blanket Lainey spoke of and if it helps Jeff.
Sincerely,
WillowBob and Nancy….thank you for sharing this with us. Please know that Jeff has touched the life of so many and that his determination and perseverance in spite of adversity continues to shine through.
With all my heart I wish for stable disease and continued strengths for a special young man and his loving parents. Please stay in touch.
Hugs
MarionDear Bob & Nancy, I am so very sorry to read that last PET was not good. You both must be some gifted kind of parents. To have a child go through this with such a wonderful attitude. Your son is a gift as are the 2 of you. I do have one suggestion for bed sores. I am not sure what it is called but you can probably Google around and find it. I call it a Lambs Blanket. Made out of Lambs wool and fits the length of the body. Teddy loved it and never got a sore. Can also be put on the wheelchair. You continue to be very strong and I will continue praying!
Hello CC Family,
We haven’t posted on Jeff in a while. His last PET/CT in the end of June was bad. Disease has progressed & Taxol was ineffective for Jeff. Our ONC put him on Tarceva. He has developed the bad facial rash that is typical for this drug.He has lost a lot of weight (& didn’t have much to lose to start with). Get’s pretty fatigued. Still does not seem to need pain meds. Not very much ambulation. Most waking hours spent in chair or wheelchair. He has just started to develop bed sores. Nancy and I are trying to manage this new challenge.
He still wants to go in to work & is able to get in most weekdays or 1 to 3 hours. Again his employer has been unbelievably supportive throughout this process. Jeff continues to amaze us with his positive attitude.
Next PET/CT in a few weeks hope & pray for better news.
Please keep our Jeff in your thoughts & prayers along with everyone else in this very special CC Family.
God Bless.
Bob & Nancy
jeff’smom&dad
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