Update on Roberts treatments.
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- This topic has 16 replies, 8 voices, and was last updated 11 years, 9 months ago by pamela.
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January 16, 2013 at 4:41 am #66830pamelaSpectator
Hi Nancy,
My daughter, Lauren had Y-90. What would you like to know?
-Pam
January 16, 2013 at 4:40 am #66829pcl1029MemberHi,
If I may, I will not recommend radioembo for treating CCA But rather use chemoembo. Based on the mortality of the patients population on this forum.
Except the very young patient who did have radioembo done and still around.
Most of the people who had radioembo in the links that Marion mentioned above are no longer here. I suspect this is related to the toxicity o f the radiation that the older patients had a hard time to recover from it.
As you may know, I am only a patient of this disease for 45 month, and absolutely I am not a doctor.
God bless.January 16, 2013 at 1:08 am #66828lainySpectatorI don’t have this experience but just wanted to wish you the very best for tomorrow. I think it is a very wise thing you are doing. Here is wishing for a good meeting!
January 15, 2013 at 11:49 pm #66827marionsModeratorGood luck, tomorrow. Until others have a chance to respond I thought to enclose a few postings:
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=7925
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=3259
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=7675
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=938Hugs,
MarionJanuary 15, 2013 at 11:25 pm #66826i3caratsyahoo-comMemberHi everyone, I am taking Robert up to Moffitt tomorrow and hope to get a second opinion with the radiation oncologist for a new radiation therapy invoving injecting 90-y glass beads into the tumor with radioablation. Has anyone had any experience with this?
December 21, 2012 at 1:14 am #66825pcl1029MemberHi,
Yes, the CCA can spread to abdomen area like the omentum ,bones and lungs.
If the patient is female, it can spread to the ovaries.
God bless.December 20, 2012 at 7:51 pm #66824marionsModerator13carats…although, people differ, we have had several reports of metastases to lung and to bone. One person in particular stands out; our JeffG:http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=579
and
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=688
http://www.cholangiocarcinoma.org/punbb/viewtopic.php?id=1405Others may also want to share their thoughts with us.
Hugs are heading your way.
MarionDecember 20, 2012 at 1:35 pm #66823i3caratsyahoo-comMemberRobert had the pet scan and some areas lit up that I have not heard are indicative of cholangiocarcinoma. Have you ever seen pelvic bone mass or small nodules in the lungs from this tumor.? He still feels great but the treatment may make him ill. Let me know…thanks, nancy
December 12, 2012 at 2:16 am #66822pamelaSpectatorGreat news on the huge shrinkage. Hoping the PET goes well too. All the best to you and Robert.
Love, -Pam
December 11, 2012 at 9:00 pm #66821gavinModeratorHi i3,
Thanks for the update on Robert and a 33% reduction in his tumour is good news! My fingers are crossed for good news for the pet on the 18th and please let us know how that goes. If more chemo is on the cards then my fingers will be crossed for that as well.
Best wishes,
Gavin
December 11, 2012 at 8:16 pm #66820lainySpectatorWOW! 33% is pretty respectable as far as shrinkage goes. Let’s hope for some more good news later, heck why stop the good news now! I love all the early Christmas gifts our Board is receiving this year.
December 11, 2012 at 7:07 pm #66819i3caratsyahoo-comMemberThank you all for all your good thoughts and prayers. In this holiday season when this illness takes on a life of its own, your well wishes bring us hope. Robert had a cat scan the other day and it showed that his chemo treatment of gemzar and oxciliplatin had reduced the tumor by 33%. but some tiny specks have now appeared outside the lung. He is going for a pet scan on the 18th but it looks like more chemo is up the pike. I will let you know how it goes. Meanwhile, Happy Holidays to all!
November 23, 2012 at 9:13 am #66818marionsModerator13caras…keep on dancing and know that a tidal wave of good wishes is heading your way.
Hugs,
MarionNovember 22, 2012 at 11:44 pm #66817sharonleeMemberThe dancing sounds wonderful. Good for you. My prayers are with you.
November 21, 2012 at 11:34 pm #66816RandiSpectatorditto what Lainy said! Best wishes for a good scan and enjoy your Thanksgiving.
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