Discussion Board Forums General Discussion update on tom

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  • #77559
    patzel
    Member

    he had a R0 resection (T2,N1 if I remember correctly) a year ago.
    He was not offered chemo (not done routinely in UK after a resection).

    The therapy he’s getting now is radiotherapy for a bone met on the ribs which was caused by “cell seeding” along the drainage. The doctors in Aberdeen were not able to diagnose this bone met in time and when it was finally confirmed they recommended pain killers instead of treatment.
    We then seeked advice from a specialist centre down in England where he is being treated now.

    The NHS in Scotland refused to pay for his radiotherapy in England but thanks to his brilliant and excellent consultant the costs will be covered otherwise which is just overwhelming and takes a big worry off us.

    #77558
    moontje
    Participant

    hello patzel,

    I am very sorry that you are in the same situation..it is desirable in germany but not in holland..does chemo help i don’nt now.. its frustrated not nowing what to do.how is your boyfriend fealing? does he also have a R1 resection stage T3,N1, V0, R1.

    god bless

    moontje

    #77557
    patzel
    Member

    Hello,
    I know what you are going through at the moment… we are in a similar situation. I don’t know the situation in Holland. We live in Scotland and my boyfriend is having his treatment in England in a specialist centre. Today we received the news that the NHS in Scotland will not fund the treatment in England. Luckily we will get the funding from somewhere else.

    Perhaps in your case it would be possible to get in touch with a cancer charity in Holland to get Tom’s chemo funded (or partially funded)?
    What I cannot understand: if the doctor’s advice is that adjuvant chemotherapy is desirable then it should be paid for by the insurance?

    #9184
    moontje
    Participant

    hello everyone,

    its bin a rollercaoster…in october tom had 70% of his right liver removed…microscopic he has rest tumor.. they advised adjuvante chemo.. in holland they wont give the chemo … the dokters and onc gives us not good advice..what to do…its almost they have given up on him…what must we do… the insiurence want pay the chemo.. dont now how much money it wil be for chemo… i think a lot of money… we are so scared… help us please what to do…

    thanks everyone moontje

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