Dear Moontje and Tom, what a great Christmas gift to hear how well Tom is doing. I would also definitely call the ONC on Monday and tell him anything you need too. I was on Prednisone and steroids can make you eat and eat. Then at night I would just pop up and go on the computer as I couldn’t sleep. In the meantime have a joyful Christmas and a healthier New Year!
Merry Christmas and happy new year to you, too. Tom is a trooper. I wonder if he’s getting steroids? That would account for the hunger and sleep issues. It might also contribute to the trembling. Ask his onc and maybe he can have it lowered if so.
tom wil have his second round of gem/cis next friday. he tolerated very well, only he is very hungry all the time, and must eat something.. if he do”nt do that he gets very nerveus,trembling hands and body.he isn’t sleeping very well. and complaining about higher back pain.. he is very strong and i am proud of him..
we want all of you to wisch you a merry christmas and a happy newyear.