Upset

Oh, and one more thing I forgot to say in my earlier post– it’s quite posible your abdominal pain had NOTHING to do with the cc, and they wouldn’t have found cancer even if you HAD gone back to the doctor.

That pain I had went away after two days, and they later concluded it was totally unrelated to the cancer– something to do with my esophagus, that fixed itself. Cancer normally does not cause any pain in the early stages, especially cc, and that’s what makes cc so sneaky and hard to diagnose.

So– back to the present moment– what are you doing this 4th of July weekend? I hope you can go out and enjoy a fantastic fireworks show where you live!

All my best wishes to you,

Kristin

Jtoro –

I went in or a physical because of weight loss – I thought I was depressed over my Mom’s death a couple of months earlier. After blood work and x-rays, my doctor found my tumor. I had no other symptoms…no jaundice, no abdominal pain, no itching. The doctor said, based on the size of my tumor, it had probably been growing for a couple of years.

Betsy

I totally agree with everything Kris has said. My husband had ultrasounds, ct scans etc. and none of them caught it in the beginning and in his case it had probably been there for a very long time. Live for today and enjoy every day you are given. Take care and keep coming back, it does help to know others care and understand.

Darla

Jtoro,

I agree with Kris, you really need to stop blaming yourself. I know I’m not going through this personally but my Dad is and it would tear me apart if he was blaming himself. I know it’s hard, the first thing my Dad said to me was “sorry”, to hear him say that tore my heart apart. We had a good long talk, where I told him he had nothing to be sorry about and we would fight this together, and that’s what we are doing. Our positive attitudes help.

My Dad was having yearly blood tests for his previous colon cancer, he had this the few days before he became jaundice and the results for these and his FBC were fine. All the time he went to the doctors they said it wasn’t cancer, 99% gallstones but because the stones weren’t showing on an ultrasound they were probably blocking the duct and to keep drinking lots. This carried on for 3 weeks until he was admitted as his bilirubin was getting higher. He had more Ultrasounds in hospital, then failed ERCP, when the ERCP was unsuccessful they said it was scar tissue he then had a PCT and this is when they thought something was wrong. Another CT scan showed up a 1.8cm shadow that they still thought was scar tissue, and were discussing what the next step would be, probably surgery. It took another hospital to diagnose CC, this goes to show this is not straight forward. We went through a period of blame, why didn’t they know, surely scar tissue looks different to cancer, if they had diagnosed it sooner he could be treated sooner, have more of a chance. But then we realised what’s done is done, we need to look to the future and start fighting this. This is when I found this wonderful site, and through the people on here I have become more stronger, and more determined to help my Dad get through this.

Have you got anyone you could talk to?, perhaps someone outside the family would be best, I often phone my Dads clinical nurse. I know Macmillan nurses offer help perhaps you could arrange to speak to one of them.

I have days when i just feel like crying, and i do, then i pull myself together and carry on. No one knows what the future holds and there’s no use thinking of the past, that’s gone and nothing can change it. You need to find your fighting spirit and turn all your negative thoughts into positive ones. This journey is a rollercoaster and at times you feel like you are going one step forward then two back but you have to deal with it, that’s life and at times it sucks.

I hope you manage to find your fighting spirit soon, not only for your sake but for your families.

Best wishes

Jtoro,

I am going to be a bit hard now…you are choosing to accept blame where none is due. I say that with all the compassion and heart and hope from one cancer patient to another.

Go through these pages. I would estimate over half of us have had scans, ultrasounds, blood tests that came back fine when things were not fine. I was first diagnosed on a “gut” feeling of a surgeon, not because anything was ever picked up on a scan, but because I turned yellow and didnt have gall stones. My cancer came back two years later, did they find it on a scan? No. Bloodwork? No. I just wasnt keeping food down and they thought it might be scar tissue from my original surgery so they opened me up to look at my stomach and low and behold there was another tumor. The doctors can only tract my tumor now because they put metal tags on it so they show up in the scans, not my actual tumor. This is a normal with this cancer. It hides. It sneaks.

You do NOT know they would have found it a year and a half ago. You do NOT know this would have made any difference to your treatment or quality of life. Some people deteriorate with treatment, not get better.

You have decided this is your fault which it isnt. We have all tried to make you see that this is a difficult cancer and is unpredictable and extremely hard to diagnose in its early stages. You have decided to take the blame. This is something that you need to talk to someone about because it is very unhealthy and will only eat away at your strength and energy. You need this to fight. Do you think your family blames you? Of course not.

As patients, we all feel some guilt. But you are letting it take over your journey. We cannot control what our futures hold, but we can control our reactions to it. I know I am being harsh and perhaps rude, but I am only trying to get you to open your eyes to the reality of the truth. The truth is you are not to blame. The truth is the more you blame yourself, the harder it is not only on you, but your loved ones as well. They dont want you beating yourself up and they will take on some of your guilt because they know you feel guilty over them. It is a guilt cycle. Put a stop to it now.

Please talk to someone about this. We all know how you are feeling, either personally or through our experience with loved ones. But we are unable to help you see this is not your fault for some reason. The longer you hold this guilt, the unhappier your life will be.

Hang in there. You will find the strength to fight this cancer and love life and your time with your family again. But perhaps you need to concentrate on yourself and your emotions for a bit.

Hugs.
Kris

Jtoro,

Don’t beat yourself up about what has happened. It is no ones fault. CC is so unpredictable and hard to diagnosis. My husband was going to his doctor regularly and in June his tests were all fine, including his liver enzymes. His cancer was interhepatic in the bile ducts of his liver and so advanced that he died 7 weeks after the first indications that anything was wrong. We didn’t even know for sure what it was until about a week before he passed away.

Although I have heard of it going this quickly often on this site, there are also many stories of successful treatments and people living a long time. I do believe that a good attitude does help. I have been on here since a few days after he passed away and that was almost 2 years ago. In that time I have seen some great advances and much more awareness of this very rare type of cancer. No one knows what the future will bring. Try to keep your hopes up and stay positive. Try not to look back, but forward. I know that is not easy with what you are dealing with, but please do not blame yourself. Keep in touch and let us know how you are doing. You will get so much help and support from the people here it is unbelievable. I will be hoping for the best for you.

Darla

Jtoro, please STOP being angry at yourself. NOBODY knows when they get CC at first. Teddy itched for 2 weeks. We thought it was an allergy of some kind or a bite. After 2 weeks I told him he better have LABs and 3 days later he Jaundiced. Can we go back? No. Would it have made a difference? No, not with this Cancer. You need to have a serious talk with yourself that it is nobody’s fault. Wouldn’t it be so much better to use all that energy toward getting better? We have people on this Board who have simply survived by using a positive attitude. Like our Oncologist said last week, “You are alive, so live it and enjoy it the best you can”. Or as 32coupe said, “today is a gift from God, open it and embrace it”.