Visit with oncologist yesterday

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  • #43957
    marions
    Moderator

    Susan….I agree with the others, but also wanted to mention that the physician can prescribe anti-nausea medication and pain medication.
    My heart is with you and your family.
    Hugs
    Marion

    #43956
    devoncat
    Spectator

    Perhaps you could arrange the meeting with hospice for the day after your consult. If you do it in advance hopefully the lag time for transition into hospice will not be so great.

    Kris

    #43955
    lisa
    Spectator

    I’m so sorry to hear that your husband is in such bad shape. I agree with Lainy – if hospice is called then there is a possibility that he can be made more comfortable. It’s hard to expend so much energy in pain, nausea, and vomiting.

    Best wishes for you.

    #43954
    gavin
    Moderator

    Susan,

    I am so sorry to hear this news. I do know the hurt you talk of when discussing the condition with the onc. I took my dad to every meeting with his specialist and then the one time to the onc and each time we were told the same thing pretty much, that there wasn’t anything else they could do. I guess that the first time that you hear such news it comes as a hammer blow, then to hear it again just re-inforces that hurt.

    As to the consultation with city of hope, do you have a date yet for this meeting? And also, what does your husband want to do with regards to this meeting? There are a lot of meds out there that can help with regards to nausea and pain and they helped my dad a lot. When my dad was in hospice, they did an outstanding job of controling his pain and nausea and kept him as comfortable as was possible.

    Thinking of you both as you go through this and sending lots of positive thoughts.

    Best wishes,

    Gavin

    #43953
    lainy
    Spectator

    Oh, Susan, I am so sorry. But I am not understanding why his mother doesn’t understand that he is in pain, vomiting and using up energy that should be saved, he should be in Hospice. It is your call to make and it hurts me that he is hurting so. You have tried, you gave it your best and now is the time for all to come together to provide all the comfort they can for the man they all love.
    Showing him that love would be to allow him his peace. There are RX the ONC can give him and Hospice will as well, for nausea and pain. Teddy is pretty close to pain free and and almost never nauseous. Also you can start and stop Hospice. If City of Hope doesn’t come through and you don’t know when they will I would call Hospice. Sorry, it just makes me sad to see someone suffering when they need not be in that position.

    #4286
    slittle1127
    Member

    Took husband to see the oncologist yesterday. He needed some questions answered about treatment options. Basically, we have been told since the beginning that we didn’t have treatment options. He did undergo chemo and a follow up cat scan showed no improvement at all. His liver is growing and his stomach gets larger and larger. He has some ascites and increasing pain, nausea, and vomiting. The doctor told him that he might make it until Christmas. When we asked if there were symptoms that we indicate that we should take him to the ER and she said no. Just make him comfortable. He hasn’t had a good day in over a week. Even before that, he didn’t have a lot of good days. I plan to call hospice, but we are waiting to see about one last consult with City of Hope. City of Hope is mostly to put his mom’s mind at ease that we tried. Understandably, they won’t see you if you are on hospice. So, we are probably a short time away from hospice. My husband is still able to care for his own personal needs such as shaving and showering. We are doing our best to take each day as it comes and deal with the issues of the day. Some days we do better than others. Our children are grown, but two of them have had very emotional days in the past week with grief over the thought of losing their papa. Why is it that each time the condition and his mortality is discussed with the oncologist, it hurts as much as the first time? (rhetorical question) Just wanted to post this update. Susan

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