December 25, 2017 at 6:22 pm #96346
Tilly,so sorry for the late reply. Mom was only discharged today so I was a bit sleep deprived and sleeping in the hospital for past few days What a wonderful way to end my Christmas day- NED for your husband-YEAH!!!!! Much happiness and hugs heading your way. CatherineDecember 25, 2017 at 11:55 am #96345gavinModerator
What great news indeed, NED!!!!!!!!! Yay!! Thanks loads for sharing that here with us all. Hoping that you and your husband will be able to have a great Christmas and keep on running around shouting NED!
GavinDecember 22, 2017 at 3:36 pm #96329bglassModerator
Yippee! Thank you for sharing this happy news with us. Best wishes to you and your family for a joyful holiday season.
Regards, MaryDecember 22, 2017 at 3:02 pm #96327
A good scan update to share with the community! My husband just got the results from his first post-treatment CT scan and it was great news. No evidence of local or metastatic disease. As we like to say here: NED is in the house!
Many thanks to all for your support, advice, and encouragement, TillyNovember 21, 2017 at 3:04 pm #96116spokanemomParticipant
That is such good news! It IS an odd feeling to move from active treatment to the watch and wait portion of things, but in a very good way. This is perfect timing too, just before the holidays. I wish you both peace in the upcoming months. Keep us posted.
VictoriaNovember 15, 2017 at 5:59 pm #96098
Congratulations!!!! What a wonderful accomplishment. The watching and waiting can be stressful- and unfortunately gets worse for most when you get close to “scan” time ( scanxiety is real). Have a wonderful Thanksgiving and enjoy the treatment-free time. And, of course please let us know how the scans go 🙂
CatherineNovember 15, 2017 at 4:46 pm #96097
Hi Everyone- This morning my husband had his final IMRT (radiation) session and this evening he will take his final dose of Xeloda. He had a total of 30 sessions and the Radiation Oncologist said that the final five treatments were a “boost” session where they narrowed the treatment field to the area that they were most concerned about in terms of recurrence.
Fortunately he handled everything quite well other than the expected Hand Foot Syndrome. We knew it was coming so we started with the lotion and cotton socks about three days before he took his first dose of chemo. The oncologist did decide to give him the weekends off from the Xeloda for the final three weekends and that helped as well. So he has successfully completed the SWOG S0809 protocol — sigh of relief!
He will have a CT scan in mid-December as we move into surveillance mode. I’m really glad that he’s no longer dealing with the demands of active treatment, but it will take some mental adjustment to be living in this watching and waiting world.September 23, 2017 at 9:29 pm #95159spokanemomParticipant
Such great news!! Thank you for sharing.
VictoriaSeptember 20, 2017 at 10:34 pm #95160
Saying HOORAY too!!!
Love and hugs,
CatherineSeptember 20, 2017 at 7:32 pm #95161mbachiniModerator
Yeah!!!! Good news! Happy radiation and chemo. Keep us posted!September 18, 2017 at 6:59 pm #95162
Here is what my husband posted to friends and family this morning under the heading The Clean Spleen Scan:
“I had my PET-CT scan very early this morning, and thankfully the radiologists were able to read it right away. Here’s what the radiation oncologist said to me in his e-mail: “I’m happy to let you know the PET/CT scan did not show suspicious activity in the spleen, so we can proceed with radiation and chemotherapy as planned.”
It feels strange to say “Hooray! I get to take more chemo and get irradiated,” but in the upside-down, weird-looking world of cancer treatment this is definitely good news.”
Thank you all for your prayers and support. Bravely onward! TillySeptember 17, 2017 at 12:05 pm #95164
I am so sorry for the added delays and worries. Lots of bests wishes are coming your way that the results are good and you can get back on a treatment plan soon.
CatherineSeptember 17, 2017 at 4:51 am #95163mbachiniModerator
Sending prayer and hugs your way. Please keep us posted. All my best…..MelindaSeptember 16, 2017 at 1:02 am #95165bglassModerator
I am sorry your husband had this unexpected delay in starting radiation. Hopefully the Monday scan will get treatment back on track. It sounds like the radiologist just wants to be extra careful in being sure the treatment plan is the right one.
Prayers and best wishes that the scan brings good news!
Regards, MarySeptember 15, 2017 at 11:17 pm #95166
As a refresher: my husband has extra-hepatic and/or gallbladder CC, Whipple procedure in April, currently on the SWOG S0809 protocol (12 weeks of Gemzar & Xeloda, then 5-6 weeks Xeloda and radiation). He had what we thought was a good CT scan two weeks ago and that he would be starting radiation very soon. Yesterday we got a major curveball thrown our way.
Yesterday morning we met with the radiation oncologist, and soon after introducing himself and his nurse practitioner, he started speaking with us about a finding on the August CT scan that concerned him. Peter has a 3-cm lesion on his spleen that was originally detected on his first CT scan, in early March. At that time the radiologist suggested that it might be a hemangioma, which normally is a kind of benign tumor. However, no follow-up was done based on that finding, and the lesion remained about the same size in his June pre-chemo scan. What caught the radiation oncologist’s attention is that it shrunk a little since he completed chemotherapy—and he can’t tell exactly what it is with the type of scans that have been done thus far. So he wants to be cautious and order another diagnostic scan before starting radiotherapy treatment.
The best news would be that the scan confirms what Dr. Katie Kelley at UCSF (who we are consulting for second opinions) and his primary oncologist, have said: that it seems to be an incidental finding, that it’s unusual for biliary tract cancers to travel to the spleen, and that hemangiomas can change shape over time. In that case, he will move on to radiotherapy as planned. The worst news would be that the splenic lesion is in fact cancerous and that it has been sitting there since March. In that scenario it’s gotten smaller but it’s still there, and that means the treatment game plan will likely change. Yesterday we were a mess. Today we are trying to stay hopeful and get through the weekend to the PET/CT which will be very early Monday morning. Please keep a good thought for us everyone. Blessings, Tilly
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