I am sorry to read about Frank – please know you and he will be in my prayers. I’m not sure what to suggest as far as comfort other than make sure you are keeping up in the pain with meds. April had a drain tube after surgery but that was removed and never replaced. She also made a decision pretty early on to not take any chemo drugs. I told her then and continue to stand by that decision which was right for her. She didn’t eat much the last couple of months and really food lost its appeal after her surgery in July (this from someone who used to plan vacations around good food)!
I wish I could be of more help. If you have questions about the pain meds I’d be happy to run through all that we did there. Or feel free to ask any other questions and I’ll do my best to answer them if I can.
I am so sorry to hear about the loss of your wife. My husband, Frank, was diagnosed with cc in Feb 2005. He underwent surgery (Columbia Presbyterian in NYC – Dr. Jean Emond) in April 2005, followed by radiation and 5FU, then Gemzar and Oxyplatin chemotherapys which finally ended in Dec 2005 (adjunctive treatment recommended by Sloan-Kettering – NYC and performed by Morristown Memorial – NJ). His CAT scan as of Feb 2006 was clean and as of last Saturday, the cancer has returned both inside and outside the liver. We are devastated as we know his time is limited. He has already undergone a cholangiogram which offers minor relief and will begin palliative chemo on 4/17/06. Is there anything you can recommend to make his remaining time more comfortable?
I don’t know of any charities or research organizations, but this is a good question. I would check with the American Cancer Society or the people at the Sorafenib trial – Southwest Oncology Group to see if they can use any assistance. I have thought about asking people to donate to the American Cancer Society when my time comes, because we have used them to get free lodging for traveling to doctors, as we are in a remote area.
I just lost my dear wife to cc on March 16, 2006. She was 39. The first diagnosis was in July of 2005, followed by a liver resection (along with 8 other areas) later that month. Recovery was slow but we were able to do many things for the balance of the year. There was a