What a good word…Stable

Crisis,
That is wonderful news! Its true, stability for long periods is common and remission happens sometimes too, though CC is sneaky. Hope your Halloween is all treats and no tricks!
Willow

Hi Mark. You will learn real fast here that we do not believe in time frames. No one was ever born with an expiration date stamped on their feet. We have had quite a few at Stage IV and are doing quite well, some have even done so well they had surgery. There are so many new options that we didn’t have just a few years ago. We don’t pay much attention to statistics either as every one seems to be so different. I admire the ONC who will not give time frames as that is like saying give up now! While so many are being held stable new things are happening and we have seen Miracles. Our Tiffany just had a transplant, the first of it’s kind ever! Was even put into the News. So stay strong and take one day at a time. We are big believers in 2nd and 3rd opinions as well.
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Chrissie,

My wife ( age 57) was diagnosed about 6 weeks ago and has had 4 chemo treatments after a PTC stent was placed. I happened to come across your posts about your father and it sounded sort of similar. The big thing being not reselectable ( no surgery) No one ever gave me an estimate of time ( like you seem to have received) but rather I hear less than 10 % of people live 5 yrs. with this disease. For my wife they think it started with bile duct definitely in liver and maybe gall bladder.

We haven’t had a subsequent scan yet ( we are going to do that in Dec after about 4 cycles. 8 treatments)

Your posting have given me some encouragement has it seems you are at least 6 months since diagnosis and your father is doing better.

Do they talk about any chance of surgery? From what I’ve read that isn’t a cure all but seems to be best option/extend life projections.

Anyhow keep posting and telling me how your dad is doing.

I assume this is just a post to your topic , I don’t think I could figure out your direct e-mail address.

Thanks

mark ( user name BRIELY04)

Crissie, I just love that word!! Congratulations and have a great Holiday season filled with wonderful memories!!

Crissie…I echo everything mentioned by Lainy and want to add that grandpa will enjoy his little one too. Great news all the way around. Congratulations.
Hugs,
Marion