December 13, 2007 at 11:17 pm #17544pderatMember
Thank you Richard and Jeff. I knew I could count on my CC friends to stick by me no matter what my beliefs are. Positive thoughts coming your way too. Dave is not doing well right now. His calcium has gone back into the dangerous levels and we are doing IV saline at home and Zometa (a drug to lower the calcium) from what I have read this is not a good sign. We are hoping he can keep fighting hard until the first of the year when our insurance will pay for him to go to the Cancer Treatment Center of America.
PatriceDecember 10, 2007 at 2:39 am #17543
Thanks for your honesty. We all believe in something, whatever we want to call it or even if we call it anything. CC is truly a non-discriminatory disease. It judges not on religion, race, gender, nor apparently even age. The least that we can do is the same.
Patrice and Dave – you are most definitely in my thoughts and prayers.
RichardDecember 8, 2007 at 9:56 pm #17542jeffgMember
Patrice, Like you said, we all believe in something. whether it’s energy, a higher power, or the lord above the heart of someone caring for another is a tremendous power of loving, giving and sharing. You and Dave will certainly remain in my thoughts and prayers, wishing the most positive good energy to flow your way. I have many beliefs and one of them is without a doubt positive thought. Patrice , you and Dave are in my prayers, thoughts, and other beliefs in the most positive way possible.
Jeff G.December 8, 2007 at 9:18 pm #17541pderatMember
I am not a believer in a higher power…never have been, and Dave’s situation has not changed that. I send everyone who has shared their story on this board all the good energy and love I can muster from my heart. Though that doesn’t jive with most people’s religious belief’s, I am a true believer in the power of positive thought, so I don’t think it matters what you call it, but what the intention is, and I hope you will all continue to keep Dave and me in your thoughts, prayers or whatever you want to call them, and I will all of you. I cannot be honest with most people about this as they judge me for my beliefs, but I know the folks here will not. Love to you all-PatriceDecember 8, 2007 at 4:55 pm #17540lisaParticipant
I pray for myself and others that I know that have cancer.
I also like the St. Francis Prayer.
Prayer of Saint Francis of Assisi
Lord, make us instruments
of your peace.
Where there is hatred
let us sow love;
Where there is injury, pardon;
Where there is discord, union;
Where there is doubt, faith;
Where there is despair, hope;
Where there is darkness, light;
Where there is sadness, joy.
Grant that we may not
so much seek
To be consoled as to console;
To be understood
as to understand;
To be loved as to love.
For it is in giving
that we receive;
It is in pardoning
that we are pardoned;
And it is in dying that we are
born to eternal life.
AmenNovember 19, 2007 at 2:12 pm #17539
Dear Richard, what a week ahead for you and your family. I know that must be scary for all of you when your Dad started feeling bad after having some good weeks. A late Happy Birthday to you. I’m sorry you’re having to go through all of this. I hope that you all get some comfort from your Dad talking to your Mom about what he wants.
Bill, Amy, Charlie, Linda and you Richard are in my prayers this week and every day. You all have a lot to go through this week. I’ll pray for strength and comfort for you and God’s healing hand for your Dad. Like you said, I’m glad you’re all together. Let us know how things go this week when you can.
CarolNovember 18, 2007 at 8:45 am #17538
So glad to hear Charlie is doing well. I’m very happy that you guys can spend a nice Thanksgiving together. The holiday is very timely ain’t it. Hopefully Sarah and Ben can enjoy it and not be sad.
We’re going to have a tough week. Actually the last week has been pretty hard. It’s so difficult because the preceding 2 weeks dad started to feel much better. He suddenly had more energy, distension and swelling in feet pretty much went away, and even his labs showed bili coming down from 4.8 to 3.8 to 3.2 and then to 2.9.
With the improving liver function, onc gave clearance to start new round of chemo (gemzar) but dad literally started to get worse within 36 hours. First he noticed urine was darker and then mom noticed feet and belly swelling. Labs confirmed all this with big drop in cbc’s and nutrition (which both had been going up) and increase in bili from 2.9 to 4.6. To add insult to injury he started hiccuping that same night as the first gemzar/deca and it’s been pretty unbearable for him. This wasn’t a problem in previous treatment rounds.
An interesting thing happened this past week. It was actually my birthday and we spent it together as a family. Dad put on a good face and was a real trooper. However, that night he slept very poorly due to the hiccups. So at 3 am he just lay there and mom woke up as well. They started talking and out of the blue dad asked what’s the point of living life like this. On the one hand it’s really sad to hear something like that, but on the other hand it was actually good to hear him express some sort of emotion because up to this point he pretty much hasn’t said anything. Although the message itself is not the most positive, it at least gives mom an opportunity to have a dialogue with dad about what he really wants to do.
Anyway, this coming week is going to be a bear. Ultrasound on Monday. Possible parasentesis and platelet transfusion on Tuesday. And only if ascites go down then ERCP on Wednesday. The hiccuping will definitely make the procedure more difficult. Thursday will likely be hospital cafeteria turkey for us and clear broth and jello for dad. It sure isn’t carving by the tableside along with all the fixings, but at least we’ll be together.
We can definitely use the prayers this coming week. Thanks for keeping us in yours.
RichardNovember 17, 2007 at 11:57 pm #17537
Dear Val, I hope your husband is doing well. We’re doing good. You and Rand continue to be in my prayers. Take care of yourself.
Love and Blessings,
CarolNovember 17, 2007 at 11:54 pm #17536
Richard, we’re doing well. Charlie’s just very very sore, but doing well. How is your Dad? I hope you’ll have a blessed Thanksgiving with him and your family. You all are always in my prayers. Thanks so much for praying for Sarah and Ben too. They’ve been a little lost, but much better now that we’re home.
CarolNovember 11, 2007 at 10:33 am #17535
I hope that things have been going well at Chapel Hill. My prayers are with you and Charlie. I’ve also been praying for strength for Sarah and Ben.
RichardNovember 6, 2007 at 12:54 am #17534
Val, thank you for including us in your prayers. You and Rand are in mine too. You’re so right about just telling friends and family what we need. I took your advice so that every minute isn’t taken up talking about cancer. I hope Rand is having a good week and wish you all the best.
CarolNovember 6, 2007 at 12:51 am #17533
Richard, thank you so much for your prayers. You and your family are in mine. I wrote down all your names and put them in my Bible. Surprise, we’re off to Chapel Hill Tues. a.m. instead of Thurs. so keep the prayers coming. Charlie will be undergoing his liver resection probably about noon tomorrow. I pray for healing and comfort for your Dad.
CarolNovember 5, 2007 at 8:58 pm #17532
Thank you to everyone for your messages. I wanted you to know that all of you have been specifically mentioned in my prayers at night, and especially Carol and Charlie for God’s helping hand this week.
RichardNovember 1, 2007 at 12:51 am #17531stacieMember
I’m so sorry to hear about Heidi. We’ve followed your blog all along. I’m sad to hear that Joe is feeling queasy again, but I hope that this will subside as well. Please know that you are in our thoughts and prayers.
StacieOctober 31, 2007 at 10:28 pm #17530joniMember
When we don’t know what to pray, or cannot put our thoughts into words, the Holy Spirit intercedes on our behalf, and offers up our prayers to the Lord. The Lord hears our groans, which is sometimes all we can get out. From the experience of my husband’s diagnosis and battle with cholangiocarcinoma, my faith was strengthened, and it was strong prior to his illness. Your faith WILL sustain you during this difficult time, and we are all praying for you and your family.
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