What next?
- This topic has 23 replies, 12 voices, and was last updated 9 years, 10 months ago by
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Sandie, have a wonderful trip. Fill it with amazing memories and come back ready to fight again! I wish you all the best!!
Dear Sandie, HURRAH for you! All I can say is Safe Travel, soak it all in and have a blast! You sure deserve it. Life is for the living!
May the hopes of your dreams be exceeded only by the memories resulting from the pursuit of your dreams.
Peace
Duke
Thank you for your responses. Just before Christmas, following a second nano knife opinion, I accepted that this was no longer an option. I asked my oncologist for as much time off as possible before starting another chemo treatment. I immediately booked myself on a long holiday to include New Zealand, Aus and SA. I know when I return I will have the fight of my life to get through six more months of horrendous chemo, but I also know I will have some amazing memories to help me through that journey together with the love and support of so many family and friends. hope I am strong to cope, but totally accept that if not, I will end my journey with a smile. I was offered clinical trials of Folfax but declined as I felt I still had more life me and was not prepared to take the 50/50 placebo gamble.
I hate this disease with the same amount of passion as I love to live life.
Sandie
Sandie….this happens frequently when chemotherapy has reached maximum benefit, hence physicians switch to one or more of the other available drugs. Have you consulted with an oncology radiologist as well?
Hugs,
MarionHi Sandy,
I just wanted to message you as we are also based in the UK. My Mum had nanoknife at the beginning of September and so far the news on the tumour that was ablated seems good. Unfortunately at the time it had already spread and she has a couple of nodules on her stomach. She is currently having 6 months of chemo to try and shrink these nodules. we are hoping that the next scan she has will show what effect the nanoknife had on her original tumour in her bile duct. We have everything crossed it is good news.
I wanted to message you also as i know there are a limited number of people with experience of nanoknife in the UK.
Good luck
Kate x
I went from carbo/gem for about seven months, to gem alone for about seven months. We floundered for about three months before starting on FOLFOX6 last week. Platelets continue to be limiting for me. Not only is the chemo hammering them, but my spleen seems to be trapping them. A double hit.
Have you had genomic testing done to maybe guide you into a trial?
Other internal links to detailed posts from Percy. A wealth of information, slow reading, but definitely worth your time.
http://www.cholangiocarcinoma.org/punbb … 877#p70877
http://www.cholangiocarcinoma.org/punbb … 198#p57198
Fight hard against the desperation – live life to the fullest you can – treat every day as a miracle and a gift – make the most of it.
Duke
Following 6 months of Gem/Cys which ended in May this year, my latest scan reveals that my 5 tumours (all located near my aorta) have started to grow again and 2 more have joined the party.
I am investigating nanoknife and hoping that will become an option. Meanwhile, my oncologist has offered me a clinical trial of Folfax or back on Gem/Cys expecting that the results will not be as good as last time and the regime much harsher.
It’s there any other options I am missing?
Still smiling, but getting a bit desperate.
x
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