August 6, 2013 at 5:18 pm #73605
Holly…I agree with Lainy – it is wonderful to hear from you. I am thrilled to see that you are fairing well. Holly, as you live in DC I thought to forward this event held by the American Cancer Society. Let me know if it is something you are interested in and are able to attend:
MarionAugust 6, 2013 at 5:00 pm #73604
Hey! We like hermits too. But is it is always good to hear how this little hermit is doing! We will take what we can get as its always good to see your smiling face!August 6, 2013 at 4:57 pm #73603holly22aMember
thank you Willow and Lainy. I just go all hermit sometimes, sorry. xoxoxAugust 6, 2013 at 6:53 am #73602
You sound great! Thanks for posting your thoughts and status. The Y-90 does show success though couldn’t help the tumors outside the liver so that’s where the chemo is needed. Nice to see a good response to Xeloda alone. My sis was worried it wasn’t “strong enough” by itself. Meanwhile her blood counts have stayed stable. 2weeks on and one week off, with side effects worst on recovery week. Nausea for 1-2 nights with flu like fatigue for those days. Then she feels good most of the time and carries on with life as usual. I’m really happy to hear you don’t have to take any chemo for now and things look so good for you. Keeping you in my thoughts.
WillowAugust 6, 2013 at 1:48 am #73601
Holley, jumping in here to say I love your good news! It’s also good to see your smiling face again! Keep on coasting but please let us know how you are doing now and then!August 6, 2013 at 1:18 am #73600holly22aMember
Willow, I am happy to hear of your sister’s news. She and I seem similar and I am right now trying to decide to use xeloda or not. One of my oncs says xeloda alone not much help with cc, the other onc says it is a good option. So many variations on a theme, this cancer. btw I am having a good summer on nothing – counts too low for chemo, scans show nothing there (at least nothing as big as a cm that could show up) so I have been just coasting. It has felt great. A little honeymoon, I guess. My interventional radiologist was thrilled with the y90 results, said he’d do it again when the tumors come back…did your sister’s y90 help last winter? xox, HollyJuly 17, 2013 at 6:02 am #73599gavinModerator
That is brilliant news about your husband and thanks so much for sharing that with us all!! Cancer free and healthy, doesn’t get much better than that! I hope that you both are enjoying life!
My best wishes to you and your husband,
GavinJuly 17, 2013 at 5:57 am #73598
Thats very good to hear of your husbands successful transplant!. just wondering about the Mississippi miracle mud? I looked it up and its mainly for topical skin conditions (and very expensive). Surprised to hear it relieves pain…do you mean from neuropathy pain on skin of hands and feet?July 16, 2013 at 6:37 pm #73597
sdaigre….congratulations on all fronts. The timing of your posting could not have come at a better time for our Tiff, as she also underwent transplantation. I hope that you don’t mind – I have forwarded the link of all your past postings to her.
Again, wonderful, wonderful news. I wish for continued success.
MarionJuly 16, 2013 at 2:44 pm #73596
sdaigre, It just doesn’t get any better in the news department than this! YIPPEE! You made my day. Your husband is a Super Hero and brings our site much HOPE and thank him for that! Sending thoughts your way for continued success and enjoy your lives to the fullest! Thank you for the update and this is such encouragement for others.July 16, 2013 at 2:26 pm #73595sdaigreMember
Hi, I haven’t checked in awhile but would like to tell you that my husband is 15 months out from liver transplant and doing great! Cancer free and healthy.
Cisplatin very difficult with no immune systeem and while the xeloda was rough thankfully we found Mississippi Miracle mud which relieved pain immediately unlike anything else we tried. We are forever grateful to Dr. Javle at MD Anderson and Dr. Ghobrial and Dr. Gordon-Burroughs at Methodist in Houston. Hang in there!July 14, 2013 at 1:25 pm #73594kris00jMember
Great news for your sister!! Xeloda is proving to be effective against some of these cc mutations! I am so happy to hear your sister is one of these, as the side effects can be much less than cisplatin or oxaliplatin.July 14, 2013 at 5:01 am #73593lisacraineParticipant
This is fabulous news! I am so happy for your sister..sending hugs
LisaJuly 13, 2013 at 8:33 pm #73592
Willow…everything is falling in place for your sweet sister and your family. This is wonderful news. I also live in the Bay Area hence I can only concur with the chosen place for your Dad’s ashes. It is beautiful here.
I so much can relate to your firstborn going off to college. We are so proud and yet so anxious about the future of our children. My oldest left me in tears and laughter when leaving our driveway as his parting words was: Love you, please send money. What is even more hilarious is that he only went to Sacramento a mere 60 miles from here. For his graduate degree though he went much farther, but by then I was conditioned to the change.
MarionJuly 13, 2013 at 8:07 pm #73591
Thank you all. It’s great to see my sister enjoying time with her son too. Just want him to grow up with his mom and for her to enjoy the milestones and joys of raising him.
- You must be logged in to reply to this topic.