Xeloda (oral) Questions
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- This topic has 17 replies, 8 voices, and was last updated 13 years ago by mlepp0416.
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December 12, 2011 at 1:12 am #55290mlepp0416Spectator
All:
When Tom was on Xleoda (oral) he never experienced any issues w/hand or foot issues. When he was on F-FU shortly before he passed away on 11/20/2011 his feet started to show symptoms. I used just a good skin cream and would put it on his feet and legs every morning and night and it really made a difference for him.
Margaret
December 7, 2011 at 1:55 am #55289sharimayMemberHi all,
I am just starting to have some of the hand/foot syndrome. I try to remind myself all day long to put lotion on my hands. It can be hard for me because I am a nurse and I wash my hands alot! Its not so bad yet and hopefully it doesn’t get worse. I know I will be able to handle all that comes my way. Thanks all.
Shari
December 6, 2011 at 5:31 pm #55288shardyMembernot yet, but he better watch it! Like I tell my kids, Santa is watching! But that stuff must be good if it’s helping mom’s feet!
December 6, 2011 at 5:13 pm #55287candrewsSpectatorOught oh! Is Grover in trouble?
Cindy
December 6, 2011 at 3:51 pm #55286shardyMemberGrover – stop talking about mom’s crusty, nasty feet on-line, I’m sure she wouldn’t appreciate it!!
xoxo, Mom
December 6, 2011 at 3:05 am #55285candrewsSpectatorHey Grover, I was at Rural King today and meant to buy some. My first job out of high school was at Indiana Farm Bureau Co-op, in later years became Countrymark Co-op. My dream job, I worked there 24.5 years before Land O’ Lakes took over and moved it North. But, anyway, we all used to buy the udder balm and use it on our hands and feet. There was another product too, called bag balm. But I seemed to remember that it was a more greasy product.
Sorry for the history lesson!December 5, 2011 at 11:13 pm #55284marionsModeratorHa, ha, Lainy…..we can always count on you to bring a smile to our faces.
December 5, 2011 at 11:07 pm #55283lainySpectatorGee, I wonder what it would do for face wrinkles? Could it be “udderly” fantastic????
December 5, 2011 at 10:48 pm #55282EliSpectatorRe: Udder Cream
That’s the cream that our hospital recommended. It’s not just for cows…. they do make human formula.
December 5, 2011 at 9:17 pm #55281groverMemberAlthough I am not on this chemo I do have sensitive skin. This cream was recommended to me, called ” Udder balm ” Yes it is used by farmers on the udders of cows, to keep those udders moist and able to be milked during the cold winter months. And the farmers use it also, think of all the nicks and cracks on their hands during the winter months. As they used it on the cows, they noticed how much better their own hands felt.
It says not to be used on humans, but it works great. But we have bigger problems to fight than using cow cream on our feet. My wife goes barefoot all the time and the bottom of her feet were hard, think and felt like medium sandpaper. Within 2 days of using, we were amazed at the difference. Just last night she was using some, which made me think of it.
I get mine locally at a TSC store. That’s Tractor Supply for you city folks.
Grover
December 5, 2011 at 8:13 pm #55280candrewsSpectatorThanks again Marion and Eli. I do tend to have thick hardened skin on my feet, so I have been loading up on the Eucerin cream at bedtime and in the morning again. Thanks Eli, as my nurse did not mention the thick hardened skin part. Just the hand and foot syndrome. I also soften up my hands at the same time!
Every little hint will help!Cindy
December 3, 2011 at 10:20 pm #55279EliSpectatorMarion, just to clarify… nurses talked to us about 5-FU side effects. They gave us an info sheet with all the symptoms and instructions what to do in each case. They even gave us a few samples of the foot cream that hospital recommends.
What they did NOT tell us is to get rid of the thick, hardened foot skin. That’s what my wife was upset about.
Anyway, it’s all water under the bridge now.
December 3, 2011 at 6:53 pm #55278marionsModeratorCindy…At night I would slather moisturizing cream on my husband’s feet and hands and then protect it with gloves and socks. It worked well for him.
I also wanted to mention that our Search function can provide you with some additional information regarding your treatment. Xeloda has many more postings but you will also find some interesting reading in regards to irinotecan.
Sure hope that you can get some rest tonight. You deserve it.
All my best wishes,
MarionDecember 3, 2011 at 6:32 pm #55277marionsModeratorEli…your wife had reason to be upset and I am sorry to hear that she suffered from peeling and cracking extremities. Patients need to be made aware of possible side effects caused by medications. Cindy’s nurse did what we expect from our health care professionals in that she was informed beforehand in order for her to take necessary precautions to lessen the side effects of the therapy.
The importance of advocating for those we care for has taken on a different meaning in today’s time. An active participation in understanding medical treatments and the disease is expected of us – not something we are trained to do rather it is something are expected to grow with and you, Eli, are the proof for just that.
All my best wishes,
MarionDecember 3, 2011 at 4:17 pm #55276candrewsSpectatorEli, thanks for the heads up. My Dr. and his RN mentioned that hand and foot syndrome was one of the side effects of Xeloda, and to use a good cream. We have a good cream, so I rubbed it on my feet this morning and put my socks back on. Using a hand lotion on my hands as well. So far, no side effects from the new chemo treatment I received yesterday afternoon. Just up all night from the Dexamethason.
Cindy
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