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Viewing 15 posts - 151 through 165 (of 192 total)
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  • in reply to: My Husband and Cholangiocarcinoma #34636
    32coupe
    Participant

    Margaret,
    Chuckle indeed. On most of my many recent stays at “Club Swede” (Swedish Medical Center), I insisted on changing my own dressings because they couldn’t seem to get it right – there would be tape in the wrong places so removing the old dressing would tug at the drain tube or the dressing itself would be wrapped in the tube. I considered having a tattoo applied – “CAUTION: Live Patient!” And sometimes when flushing the tube, they would apply too much pressure causing considerable ‘discomfort’ with an appropriate response from me. One nurse was even using a pulsing action – now that was fun…

    As far as a schedule, I was on a 6-8 week schedule and still managed to get sick several times in between – there was no rhyme or reason. OK, enough of my whining.

    Kudos to you for speaking up. Donna also had to get up in their face a few times. Tom is fortunate to have you as his advocate. I continue to pray…

    Grace and Peace,
    bob

    in reply to: I got sort of good news. #41717
    32coupe
    Participant

    Kris,
    I too see Buffett and Paris as an interesting combination. I mean… do they even know how to make a marguarita in Paris? Have a wonderful time and I’ll continue to pray for the very best outcome for the upcoming surgery.

    God Bless!!
    bob

    in reply to: The Emotional Roller Coaster #41249
    32coupe
    Participant

    Seabee,
    There are no words… Please know that you, Debbie and your family are in my prayers.

    Grace and Peace,
    bob

    in reply to: Hospice to the End? #41466
    32coupe
    Participant

    Hi Lainy,
    So far I’m doing well. The liver appears to be draining as it should. It’s just a ‘wait and see’ thing. We’re planning to be there the first week of Oct. if I can manage no infections for this month. We’ll keep you posted. Please extend our love to Teddy… and keep dancing.

    God Bless!!
    bob

    in reply to: Hospice to the End? #41464
    32coupe
    Participant

    Lainy,
    You made me cry and we know that is against Teddy’s wishes – it’s your fault. But the picture of the two of you dancing in the kitchen is a beautiful thing…

    Love and Prayers coming your way…

    bob

    in reply to: My Husband and Cholangiocarcinoma #34610
    32coupe
    Participant

    That a way Margaret and Tom! There’s something this ugly disease can’t take from you – sweet and precious memories. I think the best use of our resources is investing in such.

    Grace and Peace,
    bob

    in reply to: Great Check-Up #41386
    32coupe
    Participant

    Great News!! Ron is hereby awarded three “atta boys” – one for each year. Keep it up…

    Blessings coming your way –

    bob

    in reply to: I’m 31 and just found out I have this… #41339
    32coupe
    Participant

    Cale,
    Understanding how frightening this all can be, you still have cause for hope. Two important things working for you are that you are young and that you are a candidate for surgery. Those are good indicators of a successful outcome. I am praying right now for the surgery to be completely successful and for God to give you a speedy recovery.

    Grace and Peace,
    bob

    in reply to: A little dark humour… #41328
    32coupe
    Participant

    Jen,
    I like your Dad’s brand of humor – I think I could enjoy hanging out with him. And I am thrilled for your Dad and your family that he is able to participate in your daughter’s first birthday – yet another family milestone. For years, I found myself marking progress through various family milestones.

    Praying now for a really good next scan for your Dad…

    bob

    in reply to: Can lack of gallbladder effect bile thickness? #41296
    32coupe
    Participant

    Andie,
    I don’t know the answer to the question. However, there are a couple of medications which are effective at thinning bile which apparently are natural and have no side effects. I don’t know the names but I was just prescribed one which I will pick up today.

    God Bless!
    bob

    in reply to: Stand Up To Cancer #41275
    32coupe
    Participant

    Great idea. It’s done.

    in reply to: tubeless in seattle? #41102
    32coupe
    Participant

    Hi Betsy,
    So… Tuesday per schedule, I had the small tube removed after a dye test still showing good bile flow. Actually, it was sort of anti-climactic. I am now tubeless and waiting to see if we can get a long term good result. In the meantime, I am being prescibed a bile thinning drug to help the flow of bile through ducts which have been narrowed, probably due to the many sepsis and cholangitis episodes.

    I keep myself from becoming “tired of it all” by recognizing that I am so blessed to be a survivor. It could be so much worse. In my eyes, I am one of the fortunate ones. In the book of Psalms it says “It is a good thing to give thanks to the Lord” so I often begin my day considering all I am thankful for. I like to tell people that I have lived a “charmed life”. So it isn’t will that keeps me out of slumps, it’s expressed gratitude to a loving God.

    May God continue to bless you and give you hope.

    bob

    in reply to: tubeless in seattle? #41100
    32coupe
    Participant

    Hi Betsy,
    The procedures have been at Swedish Medical Center in Seattle. Most recently I’ve been dealing with Dr. Andrews. Hope that helps and hope you can get free from the tube…

    bob

    in reply to: TEDDY Update #41049
    32coupe
    Participant

    Wish I could sit in on your ‘Broadway Review’ – we love Hello Dolly and Fiddler!! Musicals can be powerful medicine. God bless you dear lady for being a gracious host to Teddy’s people.

    Prayers coming your direction,
    bob

    in reply to: My latest scan #40995
    32coupe
    Participant

    Kris,
    I really like your attitude. And the fact that you “can still play and laugh” is powerful medicine. Keep up the good fight…

    Prayers to you,
    bob

Viewing 15 posts - 151 through 165 (of 192 total)