Adalles

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  • in reply to: Battling CC since April #101355
    Adalles
    Spectator

    Thank you both for the thoughtful responses. A few updates on my mom:

    1. Liquid biopsy indicated MSH3 mutation.

    2. She was disqualified from a Keytruda trial due to high liver enzyme levels, particularly bilirubin (10 mg/dL). Doctors at City of Hope recommended Folfox to get the cancer in control and potentially a drain instead of the stents.

    3. Her blood pressure and red blood cell count have been low for the past few weeks.

    4. She has lost a lot of weight (50+ lbs) and her doctor has prescribed Remeron for appetite and Tramadol for pain.

    5. Doctors have discussed prophylactic antibiotics but have not prescribed anything yet. Thank you for the antibiotic recommendations given. We will make sure to discuss with her doctor.

    We are saddened that we cannot pursue the Keytruda trial at this time, but still hopeful as we have a couple options (Folfox and ipilimumab/nivolumab).

    Thank you for your input and support!

     

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