Adamaria, welcome and sorry you had to find us. You certainly have a difficult situation. The good news is surgery present the only sure ‘cure’. The bad news is the surgery is a big one. I would be inclined to find the best surgeon you can and let him assess the risks and present them to you to decide the next thing to do. I’m no youngster, but survived a 12 hour resection about two years ago with a world class surgeon, Dr Tomoaki Kato, a real overachiever. The surgery was done at NY Presbyterian in NYC.
Good luck in your quest.