aida

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  • in reply to: Discontinuing Treament – Not Sure Why #48914
    aida
    Spectator

    My dad hardly speaks now because its painful for him to speak and swallow. Anyone have any suggestions that might help with this?
    Thanks.

    in reply to: Discontinuing Treament – Not Sure Why #48912
    aida
    Spectator

    Wanted to give s quick update on my dad…
    In mid-March fluid started to build up in his abdomen and his Oncologist wanted to discontinue chemo because he felt my dad wasn’t responding to the drugs. The oncologist changed his mind and suggested my dad try different chemo – 5-FU & Erlotinib. My dad did two cycles of these drugs and they have almost killed him. He has gone downhill fast since starting these drugs. Today we decided to discontinue all treatment and focus on comfort alone. My dad’s lost so much weight. He’s just skin and bones right now. He barely eats. Only leaves his bed to use the bathroom. He’s so weak and lifeless. We now see it was a big mistake to try more chemo. He has no quality of life.
    We have Hospice coming tomorrow to get him registered and all that.
    He’s been getting his belly drained every week and they’ve been taking out about 8 liters each time.

    in reply to: Coping with the Pain #49034
    aida
    Spectator

    Hi,
    My dad went through something similar. He built a tolerance to Morphine and had horrible and uncontrollable pain for a while. He was put on Methadone and Oxicodone for break-through pain. These drugs made him high, sleepy and totally out of it but it did control his pain. He was eventually weaned off the Meth and Oxy and put back on Morphine. His tolerance to the Morphine seems to have gone away after being off it for a couple of months.

    Good luck to you, hope your mom can find something that helps her.

    -Aida

    in reply to: Surgery post chemo and mets Dr. Schwartz #48999
    aida
    Spectator

    Best wishes to your husband. I hope his surgery is a huge success.

    We’re hoping my dad’s tumor(s) have shrunk enough after chemo for him to have surgery as well. Is your husband’s surgeon Dr. Gary Shwartz at Sloan-Kettering?

    Again, best of luck to him.

Viewing 4 posts - 1 through 4 (of 4 total)