ajcarman72
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ajcarman72Spectator
YAY!! Very awesome news!
April
ajcarman72SpectatorYes! Funny you mentioned that because I was reading other posts – specifically by you and saw the milk thistle! I sent the info to my mom this morning and she said that she had looked it up also after seeing it mentioned here and there on the website and she started it a few days ago.
This website is such a great resource!
ajcarman72SpectatorWishing you the best for another clean scan! Reading your post is very inspirational!
ajcarman72SpectatorThanks Kris!
We are pursuing the PDT treatment in Philadelphia. I have phoned them and we are working to get her records and scans sent there to see if she is a candidate.
The doctor told her early this week that even though she was approved for the Y-90 microspheres that her liver function isn’t good enough. Similarly the clinical trial she is supposed to start on in early March has said that if she can’t get her liver function back in line, they will have to eliminate her from the study. It has been a rough week.
Though we are hopeful that if she can go get the Photodynamic Therapy that might help her get her liver function back in line a bit and then pursue the microspheres.
ajcarman72SpectatorMayo, as others have mentioned.
But also look at the University of Nebraska. I found them by chance, I think from reading posts here. They follow the Mayo protocol. I spoke with them on the phone regarding my mom and they were very nice.
ajcarman72SpectatorThank you for this link!
ajcarman72SpectatorGreat news! My mom was on Xeloda a few weeks ago and she tolerated it well and her CT scan showed no growth. Wishing Dave continued success!
ajcarman72SpectatorI want to thank everyone for the wonderful thoughts and sentiments.
We had some positive news that has raised her spirits since Wednesday that at least the fluid is not malignant.
I will look into the photodynamic therapy and thanks to all who suggested that. We are still waiting for the results from the angiogram to determine if the microspheres are an option.
She has enrolled in a clinical trial that her oncologist is one of the PIs on and that starts the first week in March, she will be off chemo for the next two weeks as the “wash out” period for that trial.
The periods of time where she isn’t treating the cancer in some way are always the worst on her. She wants to be doing something to fight it.
ajcarman72SpectatorYay! Love reading the good reports!
ajcarman72SpectatorHappy anniversary!!
ajcarman72SpectatorHave a good trip! You and your mom are in my thoughts and prayers.
ajcarman72SpectatorThinking about you and Hans, Kris! That is a lot to take in. You are in my thoughts and prayers as you prepare for this as well as during.
ajcarman72SpectatorCongratulations on your upcoming anniversary! Thanks for the words of encouragement too – they really help!
April
ajcarman72SpectatorYay yay yay! Very exciting!
ajcarman72SpectatorGreat news! Yay!
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