ajcarman72

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Viewing 15 posts - 16 through 30 (of 80 total)
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  • in reply to: Wonderful news on my CT scan today!!!!! #35784
    ajcarman72
    Spectator

    YAY!! Very awesome news!

    April

    in reply to: Update and request for advice #35556
    ajcarman72
    Spectator

    Yes! Funny you mentioned that because I was reading other posts – specifically by you and saw the milk thistle! I sent the info to my mom this morning and she said that she had looked it up also after seeing it mentioned here and there on the website and she started it a few days ago.

    This website is such a great resource!

    in reply to: getting ready for my next scan on Febraury 18 #35724
    ajcarman72
    Spectator

    Wishing you the best for another clean scan! Reading your post is very inspirational!

    in reply to: Update and request for advice #35554
    ajcarman72
    Spectator

    Thanks Kris!

    We are pursuing the PDT treatment in Philadelphia. I have phoned them and we are working to get her records and scans sent there to see if she is a candidate.

    The doctor told her early this week that even though she was approved for the Y-90 microspheres that her liver function isn’t good enough. Similarly the clinical trial she is supposed to start on in early March has said that if she can’t get her liver function back in line, they will have to eliminate her from the study. It has been a rough week.

    Though we are hopeful that if she can go get the Photodynamic Therapy that might help her get her liver function back in line a bit and then pursue the microspheres.

    in reply to: liver transplant #35095
    ajcarman72
    Spectator

    Mayo, as others have mentioned.

    But also look at the University of Nebraska. I found them by chance, I think from reading posts here. They follow the Mayo protocol. I spoke with them on the phone regarding my mom and they were very nice.

    in reply to: Photodynamic Therapy PDT in the USA #35082
    ajcarman72
    Spectator

    Thank you for this link!

    in reply to: UPDATE ON DAVE #35574
    ajcarman72
    Spectator

    Great news! My mom was on Xeloda a few weeks ago and she tolerated it well and her CT scan showed no growth. Wishing Dave continued success!

    in reply to: Update and request for advice #35551
    ajcarman72
    Spectator

    I want to thank everyone for the wonderful thoughts and sentiments.

    We had some positive news that has raised her spirits since Wednesday that at least the fluid is not malignant.

    I will look into the photodynamic therapy and thanks to all who suggested that. We are still waiting for the results from the angiogram to determine if the microspheres are an option.

    She has enrolled in a clinical trial that her oncologist is one of the PIs on and that starts the first week in March, she will be off chemo for the next two weeks as the “wash out” period for that trial.

    The periods of time where she isn’t treating the cancer in some way are always the worst on her. She wants to be doing something to fight it.

    in reply to: Good Scan results – that’s 2 in a row! #35523
    ajcarman72
    Spectator

    Yay! Love reading the good reports!

    in reply to: Today is my six-year anniversary #35439
    ajcarman72
    Spectator

    Happy anniversary!!

    in reply to: treatment doesn’t seem to be working #35313
    ajcarman72
    Spectator

    Have a good trip! You and your mom are in my thoughts and prayers.

    in reply to: Plan set #35375
    ajcarman72
    Spectator

    Thinking about you and Hans, Kris! That is a lot to take in. You are in my thoughts and prayers as you prepare for this as well as during.

    in reply to: Words of Encouragement #35266
    ajcarman72
    Spectator

    Congratulations on your upcoming anniversary! Thanks for the words of encouragement too – they really help!

    April

    in reply to: LET’S CELEBRATE #35324
    ajcarman72
    Spectator

    Yay yay yay! Very exciting!

    in reply to: Update: good news #35232
    ajcarman72
    Spectator

    Great news! Yay!

Viewing 15 posts - 16 through 30 (of 80 total)