alison-n

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  • in reply to: Intro Donna #82532
    alison-n
    Spectator

    Hi dvacation

    I had sirt almost 30 days ago and have scans scheduled for mid June to determine if it worked or not….I have tumors on one lobe and have had mixed response on folforinox. I was diagnosed in October 2013, 42 years old. They saw a mass by my pancreas in january but the last pet showed nothing lighting up by the pancreas at all.

    the procedure itself was long but not painful or anything. I was mostly sore from being in one position for so long….

    I did have some minor pain/discomfort that night and next day – I guess inflammation of the liver and organs. But the pain meds took care of it easily and I only used them for a few days..I was tired for a few weeks, some nausea but otherwise I have had a good experience. Really hoping it works!! I started back on chemo last week and while I did have some reduction in chemo side effects from having a short break prior to y90- this first chemo post y-90 did take me longer to recover from…today has been a week and I’m feeling much better and stronger…best of luck – if I can be of any help please email me at aneustrom@gmail.com

    in reply to: Ready to join the discussion #77846
    alison-n
    Spectator

    Thank you all for the warm welcomes! I appreciate the support and hope….I did want to clarify – I don’t think any changes need to be made to the board or anything like that – I think it’s important to have a place for honesty – the good and the bad…I was only sharing that I’m learning how to hear and absorb it without it getting me down…but it would seem that learning and support is essential through the downturns as well…thank you everyone!

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