I”ve been on this trial at the Mayo Clinic in Scottsdale, AZ since July 3rd. First CT six weeks into the trial showed 18 percent overall shrinkage. The 2nd CT twelve weeks into the trial showed no real shrinkage but everything did remain stable. I’m the 3rd person enrolled in this trial site and they are still recruiting. Dr. Mitesh Borad is the PI at this site (he’s also on the Cholangiocarcinoma Advisory Board/active in this organization) and he’s. also the oncologist who now oversees my care.
So far, the side effects have been manageable (stiff joints in my hands–most pronounced when I wake up), hair loss, dry eyes/nose). I’m glad to have found this discussion group.