Aprilaire
Forum Replies Created
-
Posts
-
Originally when she was first admitted they said after CT and MRI scans that it was 1.5 centimeter tumor….when we finally took her to Memorial Sloane they did an additional stomach ct scan and an endoscope w/ biopsy. Stomach scan showed lymph nodes were suspicious and the biopsy was negative. But the Dr. is certain they are positive in the nodes, so he wants this brushing procedure done where they go in through the port, brush the nodes and get a better tissue sample.
Very frustrating as I want to just figure out the plan of action, as im sure you were feeling the same way.
Thank you so much for sharing your mom’s story, I read your past posts and it really touched me.
While at her stay at MSK Dr. Jarnigan did have a PTBD drain put in, she had the bag but once they discharged her and her levels went down to 11 they capped it. When we saw the dr last week and they did blood tests her levels went down to 9.9 and she is not as jaundice and feels less sluggish, almost like her old self she says.
I guess until they do this “brushing” procedure of the lymph nodes we wont know which road to take. Of course fingers are crossed for the resectioning, and the Dr. feels shes strong and a good candidate. Every dr and nurse cant believe shes in her 80’s they had her pinned for mid 60’s!
I guess i’m just overly concerned w/ her handling chemo and this long surgery. I’ve also been looking into IPT Therapy, if anyone knows anything about this I would love to hear.
Sounds like your mom is fighting the battle and that’s half the game. How is your mom doing today? I felt like a truck hit me when the first set of GI dr’s we saw said most people don’t survive a year without the resection surgery.
I also am just in the process of researching and gathering information as she is newly diagnosed only 4 weeks ago, as you know this is ALOT to take in.
I commend you for all you have done for your mom….you are amazing!
Mary, thank you so much for the link and kind words.
We are very lucky that mom is on no medications she is in perfect health other than this diagnosis. We’re just hoping it isnt in the lymph nodes and we can proceed with resection. One thing is for sure she is a fighter and has such a positive outlook on things.
I will definitely update my post once her July 3 visit is done.
April
