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February 17, 2014 at 3:49 pm in reply to: Biliary Catheter works!! Bilirubin count down from 600+ to 55 #79641
Re. tube not draining: as long as there is no fever, nausea, shoulder pain, it all sounds good. I’m a 5 year veteran of biliary drains.
Pat: My diet is restrictive too. Sometimes all I have to do is look at something and and I feel nauseous. I really struggle giving up sugar. And I practically live on oatmeal, eggs, fruit…..just like you. I used to love beer too. A nice cold beer (mine was Corona with lime) on a hot afternoon…..nothing better.
I have lots of scar tissue from previous surgeries. Mine have been treated with drains into external bags. I am post surgical resection 5 years with no recurrence.
Thanks for the complement LisaCraine! I’ll get back to you tmrw re. next week. Just got home from a tube change and need a nap.
I’m Betsy and have had drains for 5 years. LisaS post was so well done. I had a tube at the bra line too and bought demi-bras – not much support but very comfortable, pretty too. I am not able to cap my drains.
– If your stitches become sore, heat a wet, clean washrag in the microwave and then hold it against your stitches. It really helps speed up healing process and feels great.
– For pain relief I take percoset or tramadol.
– I use small binder clips to clip my bag to my pants. Most times, I can hide my bag inside of my pants. For showers, I have a cheapo plastic belt I wear that I clip my bag to.
– It takes me a couple of days to feel better after a tube change. Watch for signs of infection: fever over 100, right shoulder pain, nausea, bad chills. last thing you want is another trip to the hospital, yuck! I am taking a prophylactic dose of cipro. have jammies and nice clean sheets on my bed waiting for me when i get home from tube change oh, btw, i spend a fair amount of time in my pjs, so i have quite a few pairs….a girl has to have some fun, right!!
– I use 4×4 cotton squares to cover my stitches and paper tape to secure the squares. I had problems finding tape that didn’t bother me…..didn’t like silk tape. there are also wipes you can get a script for to use before you apply your bandage. Its called “skin-prep” by smith &nephew. many times my skin has gotten raw from tape so now i use this prep before using the tape. miracle product! Hope these tips help.
Just celebrated my 5 year anniversary of being cancer-free. I’m still dealing with leaky bile ducts and drains and I’m being evaluated for a liver transplant. I’m am so grateful to still be here.
Celebrated 4 years cancer free January 2013. Still dealing with stented bile ducts but otherwise o.k.
Didi you ask Dr. Fung about zoloft? I take it every day and also cholestyramine. I know how miserable it is to itch and scratch like that. I couldn’t even stand to have clothes on and it was worse at night. I know itching was due to bilirubin issues but maybe it will work for hives as well.
Hard to believe it’s been a year. Glad to hear from you. It’s been several years since my parents and brother died and the grief has gotten easier to bear but I still think about them all of the time. I think you are doing a tremendous job of trying to get your life back together. Glad your son is staying with you.
Glad to see your post. Hope you are doing well.
hugs to you both,
Glad to hear it isn’t something serious but it stinks that you are still in pain. Its been weeks of dealing with this pain. Could they replace the port?
As a patient, I can understand George’s hesitation. I’ve been in the hospital many weekends and it is scary when none of your docs are around. I was sent to the ER at a different hospital on a Friday night. The ER docs took a look at my records and got spooked so they transferred me to the Clinic. The beginning of a very long weekend.
Anna – oh my gosh! what wonderful news!! Give your mom a big hug from me.
i’ve been cancer free since my resection in January 2009.
oh! thank goodness!!! i’ve been holding my breath just waiting. that is wonderful news. hugs and kisses to you both!!!
Are you seeing an MD for anti-depression meds? I see a psychiatrist for my medications. I started out with my MD but he just couldn’t get the combination right. I know it sucks to think of getting another doctor but you might give it some thought.
I haven’t taken Paxil. The problem with antidepressants is they take so long to work. I did request a psych evaluation during one long hospital stay due to extreme anxiety. The doc was able to give me an injection (cant remember what it was- but it was non-narcotic) to calm me down. It really helped.