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  • in reply to: Hawaii Bound #19473

    So delighted you had a good vacation. Sounds like it was exactly what the doctor ordered. Welcome back – we missed you.

    in reply to: Just wanted to make my own account. #19524

    Chase – great idea!! When you get it started, I’ll pass the info along to Sarah Elizabeth (17) and Anna Katherine (14). You can see their pictures on Sam’s blog; they miss Sam so much and I am sure Anna Katherine would love to participate. Your Dad was a very special person and so is your Mom; a support group where all of you could share your thoughts and what is happening would be wonderful.
    Betty J.

    in reply to: our fight time was too short #19421

    Michele – I wish I could be there for you; I feel as if we have developed a bond just because your good friends The Crockers are from Demopolis –
    small world isn’t it. I am so very sorry to hear about Tom and please, please call me if you ever need to talk. When you lose your heart and soul, the absolute love of your life, you will need to lean on someone that understands. Take care of yourself; I’ll be here if you ever need me.
    Betty Johnson

    in reply to: Two years on #19384

    Patricia – this was only a short season in both of your lives compared to the many seasons that you had during your marriage that were happy. I have to remember this when I look back and think about how much Sam suffered;
    I have to wipe that out and remember how tough, strong and good-looking he was for 34 years – not those last few months. This was probably the toughest thing that has happened in your life; you were doing the best you could possibly do and both of your emotions were stretched beyond their limits. Look back and remember the good times; I just bet they will outweigh the bad. Take care.
    Betty Johnson

    in reply to: time is coming to a close #19291

    Oh Michele – this just breaks my heart to read this today; I usually have something supportive to say but I am at a loss for words this morning.
    Just let him know that you love him and whether you know it or not, you have been building strength all along since this happened in your life and you will find it when you need it. Keep praying for that miracle; you and Tom will be in my prayers.
    Love Betty

    in reply to: My wonderful mother #19331

    Manu – I wish I had a majiq pill to give you to make the hurt go away; if I did I would take one myself. I’m so sorry for your loss – 58 is so young. I remember reading that the ones that are going through hardships in their life are blessed; the ones that are just skipping merrily through life without any problems are the ones that are in trouble. We are assured that someday we will enter a world where there is no more pain, no more tears and no more sorrow. May you have peace knowing that your Mother has entered that world. My prayers and thoughts are with you and your family.
    Betty Johnson

    in reply to: Kathleen Foley #19260

    In Remembrance – Patricia Martin
    I was browsing through the blogs today and noticed that we have lost another one of our special people to this horrible disease. Please keep Patricia’s family in your thoughts and prayers. Her story is under
    Betty Johnson

    in reply to: jaundice #19240

    Mary Anne – so sorry to read your latest post; there is probably not a day that goes by that I don’t check your blog. I can’t answer any of your questions regarding stents; Sam had intrahepatic CC and also RFA on the liver tumor but never had any problems with jaundice. I could tell by Joe’s posting that he was really looking forward to the trip to Bonaire; I wish things could be different for all of us. My thoughts are with him as he travels back to Chicago and also with you as you work things out so you can be with him. God Bless
    Betty Johnson

    in reply to: new to board #19006

    Just occurred to me that I don’t have anyone to wish me a Happy Valentines Day and some of you may not also. So HAPPY VALENTINES DAY to all of you. May you have many blessings and much happiness despite all of these difficult circumstances. “This too shall pass”….
    Betty Johnson
    P.S. Reading a wonderful book by Philip Yancey “Whre is God when it Hurts” – I highly recommend it.

    in reply to: Finally joining #19164

    Hello Terri – sorry you had to join us under these circumstances and so very sorry about Michael; it is a journey that none of us wanted to travel.

    I was e-mailing back and forth this morning with Marion Schwartz and I told her this board is like a family to me now. I lost Sam on August 10, 2006 but there is not a day that goes by that I don’t check on everyone and the progress that is being made. It just keeps me sort of “connected”; I have gained many friends. Stay in touch.
    Betty Johnson

    in reply to: new to board #19003

    I have posted a new entry to Sam’s blog about our granddaughter Sarah Elizabeth and will keep everyone updated on her progress. I remember reading a while back a discussion about the role that genes play in developing cholangio and I thought this info might help someone. If you go to the Johnson blog, it is under the second blog that is listed –
    I don’t post very often but I check on “ALL” of you everyday. Take care.
    Betty Johnson

    in reply to: Understanding the healing process #18990

    I’m sure that most of you have never heard of the Rick and Bubba talk show in Birmingham, AL. A couple of weeks ago, Rick Burgess’ two year old son, Bronner, wandered out of the house, fell into their pool and drown. It was the Saturday that it snowed in Alabama and all of the children had been outside playing in the snow. Rick’s tribute to his son “A Father’s Heart” can be found on I encourage anyone on this site that has lost someone, that may be hurting or grieving or just has unanswered questions as to why things happen to listen to this tribute; it is in 3 parts and each one is about 9 minutes long. It is unbelievable. My best to all of you.
    Betty Johnson

    in reply to: Familial tendencies #15600

    Terri – I’m certainly not an expert but I do know that there has to be some family gene connection. Sam’s daughter has ulcerative colitis which is a risk factor for CC and his granddaughter has Chrohn’s disease.

    The other coincidence that Nancy Sloan and I noticed was that so many of these that had CC were long-distance runners. We thought that to be odd also. I doubt if this helps you much but thought I would pass it along to you.
    Betty Johnson

    in reply to: Our Wonderful Husband, Father and “Papa” #15385

    C. S. Lewis wrote in “A Grief Observed” the following:
    “There is sort of an invisible blanket between the world and me. I find it hard to take in what anyone says. Or perhaps hard to want to take it in. It is so uninteresting. Yet I want the others to be about me. I dread the moments when the house is empty. If only they would talk to one another and not to me.”

    What you are feeling right now is so very normal. I have read so many grief books and all of them say to let yourself grieve for as long as it takes. God says that the more hopeless your circumstances, the more likely, your salvation. The greater your cares, the more genuine your prayers. The darker the room, the greater the need for light. I have to believe that there is light at the end of this tunnel and that when we see Dan and Sam again, it will absolutely be the most unbelievable reunion we can imagine.

    I cannot tell you that I am doing good; I am not. I miss Sam every second but I am trying so very hard to keep going knowing that one day it will get easier. I’m not sure whether I will ever be completely happy again but I think that unhappiness on earth cultivates a hunger for heaven. We were not made to be completely happy here; we will once again know moments of joy or even days of peace but it simply will not compare to the happiness that lies ahead.

    You and I are so very special now along with all of the ones on this site that have lost someone so precious to them. We have God’s attention; he will heal our hurts. I will be thinking of you as you face these very difficult days ahead. Please keep in touch.

    in reply to: Our Wonderful Husband, Father and “Papa” #15382

    Juanita – I am so very sorry for your loss. I pray that you and your family will find peace and strength in the coming days as you face this very different journey in life without your precious Dan. May you feel God’s presence every minute.
    Betty Johnson

Viewing 15 posts - 1 through 15 (of 39 total)
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